Hi all,
I've got a question I'm hoping someone can shed some light on. I'm 14 months post J-pouch, my pouch was created in only 2 steps, first colon removed and ostomy created, then ostomy takedown, pouch created and connected in same surgery. I had lots of problems for the first 6 months with urgency and pain and then things started to settle down and life was good.
About 4 months ago I started to get a new sharp stabbing pain, in the lower left side of the abdomen, by my hip, but the pain is deep inside my body and kind of snags around, it's hard to pinpoint exactly where it is. I mentioned it to my surgeon on a follow up visit and he said that's where the end of my j-pouch is and it's probably happening when it's full. So I thought nothing of it as the pain was not too bad at that point and not constant.
About 1 month ago this changed, I'm getting this pain about 10-15 times a day, every time there is anything in my pouch it starts, when it hits I can't breathe, talk or move until it passes. The pain comes in waves, and it doesn't stop until I go to the bathroom. It's beginning to feel like colitis again, pain-poop-relief, pain-poop-relief. This cycle is defeating me.
It seems to come whether my pouch is full or just a bit is in there, gas makes it worse too.
I'm going back to see my surgeon again next week but I'm racking my brain trying to think of what this could be. Adhesion? Scar Tissue? Fistula? Abscess? Pouchitis?
I have not had pouchitis since I've had the pouch, and the pain is not constant it comes and goes (thank God) but it's still there, and it's excruciating when it is. I'm starting to get really frustrated. I've never had an abscess or fistula but I have torn an adhesion and that hurts like hell but this pain is different.
Also, I'm not bleeding (much) so I don't know if that makes a difference. I always pass blood if I've eaten something rough like a salad, but no more than usual.
Has anyone else had a similar experience?
I've got a question I'm hoping someone can shed some light on. I'm 14 months post J-pouch, my pouch was created in only 2 steps, first colon removed and ostomy created, then ostomy takedown, pouch created and connected in same surgery. I had lots of problems for the first 6 months with urgency and pain and then things started to settle down and life was good.
About 4 months ago I started to get a new sharp stabbing pain, in the lower left side of the abdomen, by my hip, but the pain is deep inside my body and kind of snags around, it's hard to pinpoint exactly where it is. I mentioned it to my surgeon on a follow up visit and he said that's where the end of my j-pouch is and it's probably happening when it's full. So I thought nothing of it as the pain was not too bad at that point and not constant.
About 1 month ago this changed, I'm getting this pain about 10-15 times a day, every time there is anything in my pouch it starts, when it hits I can't breathe, talk or move until it passes. The pain comes in waves, and it doesn't stop until I go to the bathroom. It's beginning to feel like colitis again, pain-poop-relief, pain-poop-relief. This cycle is defeating me.
It seems to come whether my pouch is full or just a bit is in there, gas makes it worse too.
I'm going back to see my surgeon again next week but I'm racking my brain trying to think of what this could be. Adhesion? Scar Tissue? Fistula? Abscess? Pouchitis?
I have not had pouchitis since I've had the pouch, and the pain is not constant it comes and goes (thank God) but it's still there, and it's excruciating when it is. I'm starting to get really frustrated. I've never had an abscess or fistula but I have torn an adhesion and that hurts like hell but this pain is different.
Also, I'm not bleeding (much) so I don't know if that makes a difference. I always pass blood if I've eaten something rough like a salad, but no more than usual.
Has anyone else had a similar experience?
