Unexpected EUA....maybe crohns

hey danielle... best wishes for today. maybe its just something freak and not crohns. But I tell you.. they always seem hunt for crohns everytime something seems to go awry. it is a good thing they they checked you out and dr. remzi is looking at things closer today. fingers crossed for "no crohns" and that this fistula thing ends soon for you.
liz.

Thanks Liz but found out bad news. It's a good thing I went with my guy (pun intended) but dr remzi found a small bit and I'm waiting to meet with dr.shen.
Dr.remzi was so upset today first they didn't wait to put me out before he saw me that's his like number one when I was in the oR so I couldn't talk to him.
And then he found the crohns but he isn't worried Bc he said its small and we will treat it. He gave me his cell number today Bc we didn't get to talk or anything.
That made me feel better. But I'm pretty down right now. He said he thinks that's the reason the fistula isn't healed and it shoulda healed 30
Days ago and he gave me a shot of steroids hoping it would heal. I'm just so idk overwhelmed and upset. But I trust dr remzi and I know he will do what's best for me

danielle.. I know .. you really must always see him before they put you out. Its just reassuring.

I am sorry to hear what he found but it does maybe explain some things.

Dr. Remzi has injected the steroids into my wound a few times. Last time which was just 2weeks ago, I think he went for the super-mega dose because I am still feeling all "steroided out" from them.

anyways.. dr. shen and dr. remzi are quite the team.I am sure they will come up with a good plan for you. In fact, my stupid wound is so not healing that for EUA #8 in the next few weeks Dr. Remzi is bringing Dr. Shen into the operating room to try something else.
good luck.I imagine you are hanging out in that waiting area to see Dr. Shen and you are probably just exhausted from the EUA. Get some good seats and try to lie down and have a rest until you see him.
best wishes.

I know hearing Crohn's must really make you want to scream, since it means no further hope for a cure, but now it is all about management. But, once your shock wears off, you may feel some relief to know that there is a reason for all of this, and perhaps a new direction for treatment will be presented. The focus will be on inducing remission, then maintenance treatment to prolong remission. That is the key. Crohn's does not mean you will lose your pouch (although that is a possibility for any of us). Plus, they are coming out with new treatments all the time.

I don't even have a Crohn's diagnosis, but I am taking the drugs that would treat it (for my arthritis). I must say that I am thrilled to be able to feel this good, and my pouch has actually looked best since being on these meds.

Good luck,

Jan

I bet you are steroided out I would be. I hope that something works my wound from my incision infection (transverse scar) was awful. Took forever to heal but he said yesterday that it looks great and I've been bandaid free for 2 1/2 months now!

You are right it is reassuring and I needed his typical hug today Bc I was nervous and I didn't get my "there's my girl give a hug" but Sara was there who was in all 3 surgeries which was somewhat assuring.

I've been told and have seen that when you pair these 2 up that it's dangerous in a good way, and I think you are right this could explain a lot. And right again I'm exhausted from all the pain meds and meds from being under I'm currently laying my head in my dads shoulder. He's making me feel better. For the time being. Weird there was another Shepard remzi performed surgery on and is seeing Shen we don't ever see Shepard spelled the same. I'm nervous to meet him though.

Jan- my pouch is dr.remzis baby and he thinks with this I will be ok. I trust him but you are right always a chance with us all. I think this did happen for a reason all of this did I won't know today maybe not tomorrow but one day I will.