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Hi everyone,

Does anyone see any harm to my pouch with taking miralax for my anastomatic stricture? My GI has recommended this to keep things moving as I do have a very tight stricture at the anastomosis. I am wondering if anyone else has had to deal with this?

At this time, it is really looking like surgery is in my future. The stricture is making things difficult for me and I am not sure any number of additional dilations are going to help, nor will they help heal the ulcers in my anal canal and on my cuff which are not healing due to the stricture.

My GI has finally come forward and told me he feels most of my issues are mechanical (probably surgery related). He feels the pouchitis I have in my distal pouch is from not being able to fully empty my pouch due to the stricture and the same issue with the ulcers not healing due to constant straining/ishemia. This would explain probably why after a full year of various rectal medications, nothing is working. I finally stopped suppositories yesterday as I cannot deal with having to insert anything else in my anal canal that is not helping anyway (anucort actually makes me bleed more).


As of today I have started drinking WAY more water, exercising daily, trying some yoga moves to hopefully increase blood flow to the anal area and will most likely try the miralax. I will be having my 6th scope
since my takedown almost 2 years ago and we will decide where to go from there.

My GI indicated after talking with Dr. Remzi, who scoped me in November that he feels surgery is in my future just from the stricture alone. Dr. Remzi did tell me this himself after I saw him in November but referred me to Dr. Shen to see if we could find a medical solution first. Seems I have run out of options and I really think I am ready for whatever my next step is, no matter what it may be, so I can just get on with my life.

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Thanks for the replies. I read about lactoluse and was not to keen on the side effects. I am going to give the miralax a try with lots of water every day and exercise. I am trying to avoid this reconstruction surgery like the plague as I know the success stories drop greatly with every re-operation and I am dreading the thought of a perm ostomy.
J
I personally never had any side effects with lactulose. In fact, I thought it was one of the most innocuous drugs I have ever taken. So in case miralax doesn't do it for you.. lactulose may be worth a shot. hope one of these gets you some relief.

fyi... something also just to add to your thinking mix.... dr. remzi's surgery schedule is generally booked pretty far in advance.. unless of course something is a dire emergency. It was four months for me to get on the schedule once we decided to excise my jpouch. But only 3 weeks when he did my previous surgery to disconnect the jpouch... as he considered that one an emergency I think.
L
I guess I am still in denial Liz. My pouch function is really acceptable(aside from the straining from the stricture). I am still bleeding while on antibiotics and suppositories so I know it is not a good sign. I am having a scope with my GI in the next week and we are going from there. I cannot tell if my pouch is bleeding or if it is the cuff and the rectal ulcers. My GI works very closely with Dr. Remzi, so I am sure he can help me work something out.

I am very concerned about this surgery and the potential failure rate and really need to think about whether I want to have repeat surgeries or just get it over with and get rid of the pouch in full. i don't think I can handle more complications from the revisional surgery that will end me up with pouch excision in the long run and another waste of year in between. My track record is just not good.
J
Jeane,
Sorry this is happening to you,it is no thrill trip for me although my attitude has hardened and i am in this to win it if possible.I do not want to go back to the bag if it is all posible and i am hoping you won't either.The information you get by reading all the posts on this site is priceless and has helped me turn around a negative attitude.Jeane to you better health and i hope you will feel better in the near future.
P

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