my wife gets a news letter from the chrons and colitis foundation. she says she needs to sign up for it again.
http://www.ccfa.org/
she really likes the info there
yes, chrons runs in her family, so far no symptoms though (fingers crossed...)
our kids have a double wammy in there genes.
Aaron

Your local branch of the CCFA may have a support group that you and your daughter might want to attend. I go to a CCFA support group in Connecticut. It's mostly people with UC, a couple of J Pouchers and one permanent ileostomate, but I am sure the composition of support groups vary depending on the branch. One thing I noticed is that people in my support group have brought their mothers or significant others and they have been welcomed into the group. It is somewhat educational for them but in your case perhaps you can meet other Moms of IBD patients and develop a local support network in NJ.

Thank you both. I meant to ask for an online site that is similar to this jpouch site.
Still in hospital and want some information

Sorry to hear about your daughter. Try healingwell.com and click on the Crohn's forums. Similar to this site.

I hope they are wrong and this was the last surgery she will ever need.

Thank you so very much.

hugs

There's crohnsforum.com (i think that's it - google "crohnsforum". It's quite active and there's a lot of information there. Personally I think it's better than the HW site where people are pretty grumpy and down. Understandably but doesn't make for a good place to ask questions/get support in my opinion). Hope she's better today!

There are several Facebook groups. Some are like social clubs and some are more serious.

Thank you kill. I found the crohnsforum a few days ago, just have to "learn" it. Thank you for the well wishes.

TE, I'm not on facebook, but maybe I will have to join.