Second J pouch recommended as option

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Has anyone had a second j pouch constructed? If yes, can you share how the procedure was done? Several steps with take down or different?
Has anyone experienced a j pouch that has completely changed shape with inflammation that has caused stenois and as a result very little room to expel? Would appreciate insight. Thanks.

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KelsieMember

Hopefully you will get some responses to your question. I assume by your post that a new pouch is being recommended?

My daughter just had surgery to start the redo process. Originally the surgeon was going to do it in two steps--disconnect old pouch and create a new one in the first step with a loop ileostomy and then the second step would be the takedown. However they sometimes do a diverting ileostomy first to give some healing time before doing the new pouch. This is what my daughter just had done. I have been told that a new pouch is a much bigger operation and recovery than the original jpouch surgeries. So from my understanding it is usually a two or three step process.

Have you had dilation done for the stenosis?

My one recommendation would be to make sure if you have a new pouch done to have a very experienced surgeon in reconstructs!

12/27/1210:45 PM

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SMMember

thank you for your reply

12/30/123:11 PM

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