Definitly cramping!! Sometimes I cant stand up strait at all. And sometimes it comes out of nowhere and drops me to the ground. I have had constant pouchitis since my takedown in 2003. I also get extremely fatigued out of nowhere. My job is extremely physical. So it makes life alittle frustrating. I guess ever part of all this make life alittle frustrating though. Good Luck

thank you for the info--the cramping is pretty bad, it doesn't let up whereas my UC cramps would come and go and were more tolerable. tylenol isn't doing the trick--any suggestions?...michelle

Antibiotics -cipro and flagyl are 1st line antibiotics for pouchitis treatment, xifaxin and augmentin second line. There are others as well. All of them work for me.

Try asking for a prescription for Bentyl or Hyoscyamine, which is what I take for the cramping.

thank you karbear--i'll do that.

Cipro is what works for me. In addition to cramping, I experience what seems like a very sensitive pouch - a small(er) quantity of content creates an urge to go.

BTW, you may want to explore the "Pouchitis" forum instead of the "General Discussion" forum.

yes, thanks. didn't realize until after i posted that there's an entire separate section for pouchitis...