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I had a 'perfect' stoma before my JPouch creation surgery on the 12th.
Now my loop stoma has the output opening right at the bottom going straight into the skin.
The Ostomy nurse at the hospital told me that I can't use convex wafers because I'm too firm for them under the stoma and to just fill up the crease with powder. that only works so long.. Help!

Thanks!
Jen

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You should contact one of the ostomy supply companies to see if they can send you a convex wafer just to see if it works. Also, contact your surgeon - if you're really having problems and the leakage is causing skin erosion, maybe you can have your takedown date moved up.

Loop ileos - aren't they wonderful?

You should PM some members here as well to see if they can offer some help. JillM and WinniethePooh might have some suggestions.

Also, read WinniethePooh's post about Dermacol. I wonder if that's something that might help.

I hope you find relief soon!

kathy Big Grin
kathy smith
I"ll echo what Kathy said. Any of the ostomy supply companies will mail you a range of samples for convex wafers to try. They can also help you over the phone - they'll put you right to a stoma nurse. My permanent stoma tilts down like that, and I had to go to a convex wafer. Before I could get that to work, I used a lot of stoma paste in the depression, and I started out powdering, but pretty soon it was evident that the life of the powder was a matter of hours. I've also had extra material the wafers are made of, and cut that to layer in the trench. It might help to watch the state your gut is in when trying to change: my stoma is more relaxed and not so sucked into the belly tissue if I change the first thing in the morning before anything hits my mouth and starts peristalsis. When I've eaten anything, then the stoma is really sucked in tight to the tissue beneath, making changes more difficult. Also, if you have really liquid waste, which I did at your stage, then the wafers don't last as long. You might try upping your soluble fiber by eating more oatmeal, white sourdough bread, and white rice. There are lots of other ways too - you can read about it at the Heather's IBD site. Make soluble fiber the first thing down the hatch at every meal.
SF
I"ll echo what Kathy said. Any of the ostomy supply companies will mail you a range of samples for convex wafers to try. They can also help you over the phone - they'll put you right to a stoma nurse. My permanent stoma tilts down like that, and I had to go to a convex wafer. Before I could get that to work, I used a lot of stoma paste in the depression, and I started out powdering, but pretty soon it was evident that the life of the powder was a matter of hours. I've also had extra material the wafers are made of, and cut that to layer in the trench. It might help to watch the state your gut is in when trying to change: my stoma is more relaxed and not so sucked into the belly tissue if I change the first thing in the morning before anything hits my mouth and starts peristalsis. When I've eaten anything, then the stoma is really sucked in tight to the tissue beneath, making changes more difficult. Also, if you have really liquid waste, which I did at your stage, then the wafers don't last as long. You might try upping your soluble fiber by eating more oatmeal, white sourdough bread, and white rice. There are lots of other ways too - you can read about it at the Heather's IBD site. Make soluble fiber the first thing down the hatch at every meal. Let us know how you're doing.
SF

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