I only got to see Dr. BoShen once so far and although I would love to do so again I didn't win the lottery yet and the trip is hard on the budget. He tried to explain to me why I am the way I am but with all the amount of info I was taking in during that appointment I should have brought a tape recorder.

he had a theory and seemed to think it made some sense that with my pouch as old as it is and my PFD as bad as it is that I no longer have frequency...not with either my bladder or my pouch chronic inflammatory problems.

Is there anyone out there that has heard of this and has an idea what he may have been talking about since I am getting frustrated with my current doctors. It seems to be a road block in their understanding of what may be going on.