Hoping I can get input. I have had two full rounds of J-pouch surgery, twice with ileostomy and two take-downs. I generally feel pretty good, but have had an issue with gas leaking from my pouch, causing very painful inflammation, quickly treated by Cipro and Flagyl, which I take in cycles. Apparently I have a very small hole and gas escapes. Obviously, more could escape, of course. My surgeon, who is fantastic, has suggested that I may have to go back to closed/final ileostomy, since two surgeries weren't totally successful.
I feel very, very good when I am off the antibiotics, 2-3 BMs a day, sleep all night, the whole nine, but as my surgeon put it, it is not a fix, just a Band-Aid. while on Antibiotics I am very tired and, surprisingly, it gives me lots of diarrhea/leakage, etc. He also asked if I'd consider a second opinion and I brought up Dr. Bo Shen. I notice he is not a surgeon, but from the input on this board has a great deal of experience with J-pouches that might be beneficial and looking for way to save my otherwise fantastic pouch!
Do you feel that Dr. Shen can add further potential solutions, other than a total take-my-chances third re-do (I'm not into it) or a final closed ileostomy, even though he is not a surgeon?
Thank you!
I feel very, very good when I am off the antibiotics, 2-3 BMs a day, sleep all night, the whole nine, but as my surgeon put it, it is not a fix, just a Band-Aid. while on Antibiotics I am very tired and, surprisingly, it gives me lots of diarrhea/leakage, etc. He also asked if I'd consider a second opinion and I brought up Dr. Bo Shen. I notice he is not a surgeon, but from the input on this board has a great deal of experience with J-pouches that might be beneficial and looking for way to save my otherwise fantastic pouch!
Do you feel that Dr. Shen can add further potential solutions, other than a total take-my-chances third re-do (I'm not into it) or a final closed ileostomy, even though he is not a surgeon?
Thank you!
