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FM
Former Member
I have just had my last surgery Oct 16. I am now dealing with the urgency, frequency and lots of pressure. The urgency and frequency i can handle, the pressure is another story. Is this normal and any helpful hints. Other than that i am very happy with my decision and feel this is a much better life that the illness and my terrible experience with the illiostomy. So any helpful hints would be so appreciated. Thanks.

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I remember having similar feelings right after my takedown. It is normal and it will go away. I think just finding out what foods work/don't work for you and trying to get back to what you were doing before surgery. I find that relaxation techniques also help me when I'm feeling pressure. The more anxiety you have the more pressure, frequency and pain you will have. Using a hot water bottle or a hot/cold rub sometimes helps me take my mind off things. It will get better, I promise.
LG
mary -lynn I have the same problem 4 months on went to my local GI who prescribed encourt total disaster did not work when I begged him to prescribe Tincure of Opium to stop the never ending bowel movements I realize most physicians do not give a damm if your in pain or not,I advised him it would not work but when you are a no it all,the more I deal with Physicians the less respect I have for them,besides I believe they look down on there patients.
P
Mary-Lynn I know the pressure you speak of and it makes life uncomfortable. Sitting, driving, standing can all hurt. I was really looking forward to having my take down surgery because they said the pressure would go away then. And it has subsided, I even drove comfortable for one whole day. The thing is I have a colon stricture and it usually does work itself out but sometimes it doesn't. It would not hurt to bring up to your doctor because they can lead into complications.

I am on week 7 and I am hoping the stricture is working itself out.
V
Basicslly I'm in the same boat. 2 weeks post takedown and 'generally I'm ok' but I still get these bouts of extreme pain that last 10-15 seconds. Sometimes it's gas. Sometimes it's not. It always makes me want to run and sit down on the toilet though. Probably doing 10-15 a day at the moment. Hoping it goes away over time but I'm seeing my surgeon in 3 weeks hopefully he can shed some light on it. I also had a pretty bad stricture that he sorted out under GA 1 week before takedown when he did a pouchoscope to check on the pouch so wondering if that has something to do with it... If these pains didn't come. I'd be very very happy...
FM
I have had two illiostomies and two J-Pouches created. The first one was in 1997 and the second was in 2010.(The first pouch began to prolapse in 2009) Both came with their own set of problems but the commonality between them was after the takedown surgery was the pressure I felt when I had to go. (Which was every 10 minutes it seemed.) It was like a balloon that was too full. After weeks of learning to control movements (both times) the pressure seemed to subside somewhat. The pouch hurts like the devil when it is stretching from being filled up for the first month or so. It will never feel like it did before your pouch was created, but it shouldn't hurt for long either. If you are like me and have the urgency to go a lot (all the time) try Lomotil. It is by prescription but works well. It helps reduce the amount of times you have to go, unlike imodium which just thickens the stool by 'drying' up the excess water in your intestine. Imodium can lead to a blockage in the intestine which makes the surgery pain seem like a hang nail. Last week I had hernia surgery and adhesion removal from the site of the two ostomies. This makes surgery number 7 I think on the stomach area. (Not including the 30 or so oscopies to remove polyps and other needed parts on the inside.)
D

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