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Evening
A question for old timers with pouch.How often can you say you still have problems with it.What do you do to help yourself thru the rough moments?
Are you still followed by your surgeon even after many years of recovery?
I am one year Post I was doing fantastic I mean not one complaint .All of a sudden I was ill again from gas pains which were severe to vomiting and diarrhea for over a day.No I did not call MD and am playing wait and see .Today I am much better.I am truly curious to we have a time every so often .I am not eating out of ordinary.I been doing very well with adding to my diet.Till other day..
Thank you for your input.

Cassiecass

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I've had my pouch since 1997. I was 16 years old when I got it, and went through the late teenage invincibility that I no longer needed my surgeon, so I haven't seen him in about 15 years...

I totally commiserate with the gas pains you are referring to... I still to this day, get them on occasion so badly that it takes my breath away... It normally only lasts a few hours for me... As much as I never remember eating anything strange, I have tied it to eating too much corn, or too many raw fruits and veggies without eating some "simple carbs" as well... I'm a pescetarian so I eat LOTS of veggies...

Overall I've done wonderfully with the pouch, but in my experience there are occasional pains and issues to deal with. Not sure if its the BEST advice, but to me it seems just par for the course and I'm still doing great 15 years later!
B
I've had mine for 33yrs...(a k pouch: same pouch, different exit strategy)...for about 20yrs after the 3rd & final pouch surgery I was pretty good...I had bouts of pouchitis that were controlled by flagyl, dietary disasters that caused 'hiccups' in my pouch's life but other than a K pouch related problem (pouch fell off of the wall and had to be reattached)I was pretty good...there are pouchers that do fine 'forever' and others that don't...as my dad said, 'don't expect the worst but be prepared for it'.
Sharon
skn69
Could you have had a little bug or gotten a little food poisoning? I know there are times when I blame my pouch for things, but before I had UC and before the pouch, I still had times where I would eat things that didn't agree with me, so I wonder if some of those times it's not necessarily the pouch.

Glad you made it to a year and you are feeling better again!

I am 1.5 years out and doing well, too.
D
A J Pouch will not immunize you from food poisoning or gastrointestinal viruses and these events can hit very, very hard......and that is what it sounds like especially if you were vomiting. It's a huge problem going through these events because a J Poucher will dehydrate rapidly (in my case it happened to the point of passing out). The event itself would have happened whether you had the J Pouch or not. But having the J Pouch adds the risk of dehydration which will make you feel worse than you actually should feel as a result of the condition.
CTBarrister

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