Are you having any pouchitis problems? Sometimes I would get arthritis in my hip and shoulders when i had pouchitis. It would go away once the antibiotics cleared up the pouchitis.

my pouch is not connected yet still have loop ilo so no pouchitis

Talk to your surgeon, GI, or primary doc about it. I had terrible hip and shoulder pain once I weaned off of steroids. My surgeon was worried about avascular necrosis from high dose steroid use, but serial x-rays and a bone scan ruled it out. Things simmered down by themselves, but a few years later, pain returned to even more joints. Long story short, I was diagnosed with enteropathic arthritis that I now take sulfasalazine and Simponi for. I also take medication for pain and spasms.

Not saying any of this applies to you, but if you are having persistent symptoms, you need to follow up on it. This is especially true if you were on steroids at high doses (more than 20-40mg) and/or long term (more than a few weeks.

Jan

You can still get pouchitis with the disconnected pouch. I know, because I had it with mine.

thanks jan i was on high dose for awhile.Mark how did you know you had pouchitis while not connected?