I was perusing the forum, looking for information on Humira (of which I found a lot) and I noticed that my situation seems to be more common than I would have expected.
I was diagnosed with UC when I was 14. Had my colon removed at around 30. Never had any signs that I had crohns instead of UC. But, my jpouch has had problems the whole time. It wasn't quite pouchitis - or at least I was never diagnosed with pouchitis. I have had problems with fistulas and, mostly because of that, my doctor thinks I really have crohns.
I've read a bunch of comments from other people describing something very similar to that. I wonder how common it is. I also wonder if, for the people who's UC diagnosis was changed to Crohns, did anything ever help once the new diagnosis was made? (or ever?)
Mick
I was diagnosed with UC when I was 14. Had my colon removed at around 30. Never had any signs that I had crohns instead of UC. But, my jpouch has had problems the whole time. It wasn't quite pouchitis - or at least I was never diagnosed with pouchitis. I have had problems with fistulas and, mostly because of that, my doctor thinks I really have crohns.
I've read a bunch of comments from other people describing something very similar to that. I wonder how common it is. I also wonder if, for the people who's UC diagnosis was changed to Crohns, did anything ever help once the new diagnosis was made? (or ever?)
Mick