If her CRP is high she might have an infection like i did without having fever. Did she do a small bowel barium test to rule out Crohns?

This is normal after surgery. I was extremely anemic for quite sometime after surgery. I was half red blood count than what I should have been. Make sure she is taking multivitamins and also eating the proper foods. You could look up a list of foods that are higher in iron. Is she seeing a Hematologist because they can start her on iron IV sessions to get her back to normal quicker. Good luck.

She's now got bloody mucus diarrhea. Has lost 6lbs since July 10. More blood work done today. She did a small bowel barium test prior to her first surgery in Oct. stopped the iron pills as they kept getting "stuck" and had nausea.

oral iron will definitely slow down the guts... potentially leading to nausea and blockage. And many of us (with altered guts) cannot tolerate it at all.

did they check her iron levels, iron stores - those need to be monitored on a very regular basis? If they are very low.. no way will oral iron fix that, even if she could tolerate it.

Sounds like its time for you to get her to someone with expertise in this area - for me.. it used to be an internal medicine doc in my local IBD clinic that specialized in nutrition issues, for others its a hematologist. Get her into someone,.. because it sure sounds like she needs a series of iron infusions asap. First time I finally found the right doc to take care of me, she signed me up for NINE iron infusions as my iron stores were completely depleted (turns out no other doc bothered paying attention to it for almost two years). I felt like a whole new person after about the sixth one.

Daughter's blood work done again today...now her CRP is 103. Her stool did show inflammation. Suspecting pouchitis (4 months out of takedown surgery). Iron level up to 10.7. Still low but not as scary as 9. Began Flagyl and is being scoped on Fri. Endoscopy and Pouchoscopy....praying it's Pouchitis and not underlying Crohn's.