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Hi everyone

I had my j-pouch surgery in 2010

Ive had to give up certain foods unless I can get help with too much incontinence at night and also gas from certain healthy foods.

Sure, foods like rice, potaoes, pasta help. But variety is the spice of life and i miss certain foods. Like Broccoli, Cauliflower, Legumes such as peas, and beans etc. I also seem to have an aversion to bell peppers, raw or cooked.

Is there a way to enjoy truly ALL foods and have a full diet? That's what a GI told me way back when I was first hospitalized with UC. Guess he was lying? How do you enjoy foods that cause trouble such as gas and incontinence??

Sure wished I knew then what I know now. I would have kept my colon even to the death. Seriously. Quality of life beets quantity any day.

Oh and if this helps anyone you should check into getting a bidet. Wiping is a no no. and when traveling you can use different things to spray water up there and then pat dry.

anyways I sure wished i could eat certain foods without problems. Seems there must be a way. Thanks.

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I appreciate your struggles.

You need to be patient. My surgeries were in 2006-7 and there are some foods I have been able to slowly work back into my diet, while others are still no-no's. I agree: everyone's system seems to be different, so when a poster poses an issue like yours there will likely be lots of different answers. For me, it seems I do better and more consistently to always use Bean-o for gas, to eat lots of Activia yogurt, and for fibrous foods I tend toward always cooked veggies, and chew them well along with other foods. I use Imodium twice per day. Even with all these precautions, there are still times when I get 'buttburn', have lots of loose stools, and have occassional nighttime leaks. I too, did everything possible to avoid losing my colon, but the cards just didn't get dealt that way for us.

Variety is the spice of life. Don't be afraid to try different foods, etc, but I again counsel some patience; things changed VERY slowly for me, so it is definitely a journey. You may want to look for diversions other than food/eating to draw your attention. I know this is a struggle for me- I LOVE to eat and also cook.

Hang in there. I am convinced it does get better with time, and I think if you look honestly, you would not want to go back to being sick and feeling like crap all/most of the time.

Cheers,
Mark
Minn Mark
Guess I'm lucky. I can eat/drink anything without repercussions. Have you tried introducing just one of the culprit foods in small amounts and trying it over a week? If no problems, add another culprit food. If a problem, hold off on the particular food giving you a problem. Try it again in a few months. I found that foods which didn't work for me early on became okay later. I know this sounds like work but it can yield very positive results. Best wishes!
C
There are only a few foods that I know with 100% certainty will give me problems. Eggs are one. Chili peppers are another.

But some of the foods that we are "warned" about - like broccoli, bell peppers, onions, etc., I find are OK in moderation IF..... IF.... IF... there is also some bulk of "neutral" food in the meal, like mashed potatoes or pasta.

The key for me is to dilute the desired offensive food as much as possible with bland food. That - for me anyway - seems to lessen the negative impact.
P

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