I was never told that I wouldn't be able to perform this function. However, as you may know, women don't fart. Women emit fluffies which float up to the heavens. And in that context I have absolutely no problems.

A question that I've had in the past for those who say that they're unable to pass gas/fluffies except on the toilet is what happens at night when they're asleep? Don't most people (coloned or uncoloned) pass gas/fluffies while they're asleep and thus unaware of the function? So I would think if that occurs during sleep it could occur while awake.

But, as always, we're all different.

kathy

This is a question that I have also pondered but embarrassed to ask.

I cannot perform this function of passing gas unless I sit on the toilet, otherwise its a big mess if you get my meaning. This has been this way for over 20 years and when I did mention that to my surgeon, he said that is normal.

This is annoying because I have a bowel movement before I go to bed, then I have to lay on my back to go to sleep. If I dare roll to my left side, my comforatable side, then I can feel the urge to pass gas, and so I have to get out of bed to go to the toilet and let this out. And its no use to stay on the toilet the first time because there is nothing left to come out. Nothing until I lay on my side.

So consequently, I have been tested for Sleep Apnea and the results came out that I do have it. While at the Hospital for this test, they said I have this problem because I lie on my back. I told him why I do that. He said when you are asleep, if you roll on your side, you sleep much better but while on your back, within 1 hour, you stopped breathing 23 times for about a minute.

So the next time I had this test done, they put that mask on you to sleep. That made it worse because it just pumps air into your lungs and so it creates more gas. I had just shy of 3 hourse of sleep because I kept waking up because I had gas to pass so I had to use the toilet. Needless to say, the mask was no option and I just live with it.

Does anyone else experiece the problem of "You have to use the toilet just to pass Gas?"

Rocket

I think the rule of thumb here is:
If your stools are formed or semi formed, then you may have success in this.
If they are usually watery/loose well then you may not be so sucessful.

I usually can but there are times I just will not risk it.

Marianne, I can't risk that either.

One other major problem I had was after surgery. In 2009, I had Kidney Cancer in April. In July, I had an Inguinal Hernia on the Left Side. The following year, I had an Inguinal Hernia on the Right Side. Anesthesia causes me Gas. Since i was not allowed out of bed after going to my room, I had to hold it in and it took forever to get a Camode to my room. Problems was that once I sat on it, since I just had surgery that mornig, I fainted after about 30 seconds. Luckily, the Nurse caught me.

Rocco

That's happened to me very rarely when I'm out for a jog. Otherwise since I've had nothing but diarrhea, 24/7, through out all these long miserable years or actually close to half my life now! Can you believe that half my life? I don't dare intentionally pass gas while I'm standing. It would most probably lead to disaster. I only wish my doctor could have warned me life was going to be this rough before he sliced me open

Dog Day - that is awful. They can't do anything for you? What if you went back to the bag? Would that at least help you? Did you not have a choice to have the surgery? I feel so bad for you. I am so sorry for what you are going through.

chrfor, if I wasn't human, or shall we just say void of all emotions, much like the Vulcan race portraid on Star Trek, I would have opted for a bag long ago. All I can do for the time being is settle for living between a rock and a hard place, and pray for more medical advancements, that hopefully will lead to the realization of a colon transplant. I'm very depressed now, searching for alternatives. I wouldn't be if I found a alternative I was happy with. Perhaps it would help if I was loaded with $$$ instead of living on disability $$$ now.

Dog Day, I feel so sorry for you. How long have you had this J-Pouch? I had UC for over 8 years but all in all, I have had my J-Pouch since 1994. Its not perfect and I get Pouchitis, but I would not want to go back to having UC again. That was the worst.

I am new to this forum but from what I read, many people rate the Cleveland Clinic very high. I suggest that you look into this to see what they can do for you. No one should have to be that miserable.

You might want to make this a new thread and see what responses you get. Just my opinion but please take the necessary steps to take care of yourself.

Rocket

I haven't even tried to pass gas while standing! If I've had a B.M. on the toilet, I can lie down on the bed (back or side) and pass gas without any accompanying stool. Even later on, the gas rises and leaves me before any B.M. does. Don't remember when I discovered I could do this. I'm over 10 years post takedown.

C.E.M, I wish I could do that. Passing Gas for me is always accompanied by stool.

Rocket

Oh, never, never, never! I ahve not farted (dry) since I was 15, when I was diagnosed with UC! I have great sphincters, so far, so I always make it to the toilet. And yes, nighttime "fluffies" occasionally result in some minor leakage.

But, it bothers me not. Fartingg has never been a big sport for me.

Jan

At times I involuntarily pass wind and it seems to "bubble" out by itself. I am not brave enough to actually fart properly though as I'm sure the wind would not be alone!

quote:

Posted July 11, 2012 09:10 PM Hide Post
Dog Day, I feel so sorry for you. How long have you had this J-Pouch? I had UC for over 8 years but all in all, I have had my J-Pouch since 1994. Its not perfect and I get Pouchitis, but I would not want to go back to having UC again. That was the worst.

I am new to this forum but from what I read, many people rate the Cleveland Clinic very high. I suggest that you look into this to see what they can do for you. No one should have to be that miserable.

You might want to make this a new thread and see what responses you get. Just my opinion but please take the necessary steps to take care of yourself.

Rocket

Thanks for the kind words Rocket. I've had my pouch for about 6 years longer than you've had yours. At the time I decided upon surgery, I felt there was no more alternatives left, besides a ostomy bag on my list. I like just about anybody else wasn't happy about the ostomy bag alternative. If the fecal transplant alternative http://j-pouch.org/eve/forums/...127041916#7127041916 existed then, perhaps I would have gave that a shot too before settling for the pouch.

I have heard of Cleveland Clinic before. How can they help me at this stage though now? Since they are on the cutting edge, would my insurance cover tham too?

I can't do it, not to mention I'd be extremely reluctant to try anyway. The only way I can fart without going to the toilet is to literally lay down on my back with my knees drawn up. It works, but something I'd only ever try at home.