Well I have issues and nobody could figure out why I was having so many pouch problems with nothing showing up. anyway short story I had another CT scan and there are a lot of things going on that I won't go into since it isn't realted to this question but I have a very large collection of fluid in my pelvic area so of course the Cleveland Clinic has journals on this that it is common to develop fluid if you have FAP and UC after a pouch is made up to a year later post op and it is just drained. If it reoccurs you just drain it again.

So anyone have this done? My GI hopes this might be the issue that is causing me so many problems. I don't believe anything until I see it since I hear so much with my disease.

I go to the Cleveland Clinic and see Dr. Shen 9/25 at least for more opinions. I have a very busy month of procedures in September. Want the pouch to be perfect so I can just deal with my tumors and polyps from now on My valve is completely twisted and I can't use the 3 hole catheter anymore, stuck with the bullet tip since it wiggles in there but it drains crappy! I can only hope this big thing of fluid is putting pressure on it and it will be magically fixed with no big surgery..