Sounds like pouchitis or overgrowth of bacteria in small intestine, a round of antibiotics won't hurt. I get symptoms all the time but test negative for pouchitis.

I would suggest flushing out your pouch daily, through the catheter. I would take a probiotic and eat live culture yogurt.

Ibuprofen and NSAIDs can cause irritation to the pouch. Are you taking any new supplements or vitamins? Anything can irritate, if you are sensitive to it.

It could be pouchitis and it may not be. That's why I would start with preventative measures first. I know ibuprofen can cause major inflammation type problems. If your pouch is inflamed it will cause trouble.

One way to confirm if you have pouchitis is to be scoped by a gastroenterologist. If the walls of your pouch appear to be red and inflamed, then you probably have pouchitis. A 10-14 day round of antibiotics would be in order. Cipro or Flagyl would do the trick.

I have been scoped twice and have no signs of pouchitis but I have all the symptoms so they think I have reoccurring bacteria overgrowth, same symptoms so your scopes won't always show something. My scopes look golden.

Rosie,
If it is pouchitis they will probably have to put you on flagyl of another anti biotic like cipro but if it is bacterial overgrowth that won't really help a lot...try going onto a clear fluid diet, NO milk products at all, no sugars either and drink tons of fresh veggies juices, homemade broths and veggies soups and start taking probiotics immediately along with brewer's yeast and see if you start to improve in a couple of days.If you do then you can introduce grilled chicken breast and fish into your diet and some easy veggies like mashed potatoes with olive oil instead of butter.
This might help even if you do have pouchitis and ease up on the cramping too....
Do not forget to double up on your hydration if you are intubating more often because you are loosing a lot of mineral salts and keep those electrolytes up too.
Hugs
Sharon

Bacteria Overgrowth is treated with antibiotics, it works wonders for me. night and day if I go off them.

Thanks everyone! I am going to see the doctor today to see if I can get some answers.
Thanks,
Rosie