I am just over my 6 months after take down. I have just reached a good point where my fissures have healed, I am going about 5 times a day. I am ready to start moving toward getting my diet more healthy so I can keep my over all health good. Does anyone know of a good nutritionist who specializes in jpouches? I am willing to do skype or phone consults if I can't find anyone near by. The nutritionists at the hospital give me such general info I don't find it helpful. Since the rules have changed for me I want someone with experience who can help me figure out the best way to keep myself healthy. I know every jpouch is different so I hope to find someone who knows that and is willing to help me find a new balance.
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Personally I don't think you need a diet that is any different than the average person. Our needs are the same as regular person. If you have problems with fruits and vegetables, you might get better information from pouchers who have learned how to work with those foods.
And in my 11 years with a pouch, I have not even met a doctor who knows what one is; finding a nutritionist with jpouch experience is probably close to impossible; unless he or she is one
Sue
And in my 11 years with a pouch, I have not even met a doctor who knows what one is; finding a nutritionist with jpouch experience is probably close to impossible; unless he or she is one
Sue
I think a safe way is to introduce just one new food at a time. 
Suebear,
Some of us have malabsorption issues after take down. I agree that it is not a common issue but it definitely can be a problem that leaves doctors clueless. I have to be very careful of what and when I eat and what liquid vitamin and mineral supplements to take and how far before or after my meds. Without a nutritionist, I was ending up with severe shortages in magnesium and vitamin D. I actually set the state record for having the lowest three measurements of Vitamin D ever recorded. I now know all kinds of tricks that help me absorb what I need but I would not have known without talking to a nutritionist who has studied these issues and worked with professional athletes with j-pouches. I am training for a half-marathon and the timing of hydration and nutrition has been very different from what my friends without j-pouches are able to do. The nutritionist I spoke with is employed by a local professional team. She helped me as a favor so I do not feel comfortable giving out her name.
NJK: Could your surgeon give you a referral?
Some of us have malabsorption issues after take down. I agree that it is not a common issue but it definitely can be a problem that leaves doctors clueless. I have to be very careful of what and when I eat and what liquid vitamin and mineral supplements to take and how far before or after my meds. Without a nutritionist, I was ending up with severe shortages in magnesium and vitamin D. I actually set the state record for having the lowest three measurements of Vitamin D ever recorded. I now know all kinds of tricks that help me absorb what I need but I would not have known without talking to a nutritionist who has studied these issues and worked with professional athletes with j-pouches. I am training for a half-marathon and the timing of hydration and nutrition has been very different from what my friends without j-pouches are able to do. The nutritionist I spoke with is employed by a local professional team. She helped me as a favor so I do not feel comfortable giving out her name.
NJK: Could your surgeon give you a referral?
Subzero,
Agreed, that some may have other contributing health factors, but he/she didn't state that so I am assuming that he/she thinks because of his jpouch, that a special diet is warranted. More information from the poster could clear that up.
Sue
Agreed, that some may have other contributing health factors, but he/she didn't state that so I am assuming that he/she thinks because of his jpouch, that a special diet is warranted. More information from the poster could clear that up.
Sue
No health issues ...maybe cuffitis that I have to stay on top of because my doc does not seem to catch it..great surgeon but not so great at the medicine part. I just want to keep myself healthy and I know that raw veggies will be limited. I guess I am trying to figure out where to go from here. I guess adding one thing at a time would be worth a try. Right now I am big on oatmeal, bagels with almond butter and proteins and carbs. Not many veggies. I guess I can try to add 1 veggie or whole grain a week and start to do smaller portions of carbs.
It was about 6 months before I could eat fresh fruit and vegetables, comfortably. If they don't work for you, canned vegetables and fruit have most fiber cooked out of them and can be a place to start.
Sue
Sue
I have a hard time with some fruits and veggies digesting so I get creative. I have a vitamix blender and I put all my veggies like kale, parsley, apples, straberry, spinach and spirulina (highest form of protein the body can absorb, for examples then I take the pulp that is left and I deyhdrate it into chips or a bread. that way I get all the vitamins in 2 forms. As for fruits I take coconut water as a base and add all kinds of fruit and some greens to make smoothies.
I use my dehydrator a lot. I have an easier time eating a kale chip vs cooked kale. I did a vegan RAW diet for awhile so I just started to do some things like I did pre-op. tht way you get all the vitamins you need still.
Sometimes I cook full chicken and tons of veggies in a crock pot or dutch oven then toss it all into the blender and have soup with tons of protein and vitamins in a soup with no cream in case my insides hurt but I need a good diet still.
I blog here and there. Need to update it. With tips on things like this. www.syrupandsalt.com
I use my dehydrator a lot. I have an easier time eating a kale chip vs cooked kale. I did a vegan RAW diet for awhile so I just started to do some things like I did pre-op. tht way you get all the vitamins you need still.
Sometimes I cook full chicken and tons of veggies in a crock pot or dutch oven then toss it all into the blender and have soup with tons of protein and vitamins in a soup with no cream in case my insides hurt but I need a good diet still.
I blog here and there. Need to update it. With tips on things like this. www.syrupandsalt.com