Hi all. I don't post on this site very often, but I am very curious to know how people are after 1 year. I read a lot of posts where it is said it takes about a year to fully adjust. What is "fully adjusted"? I am nearly at this milestone, have never had pouchitus or cuffitus or any other major issue, yet I don't feel comfortable with how I feel at times. I find the process of going to the toilet is not smooth. I still find it difficult to expel those last bits, and get pain following a motion. I have had a Defacating proctogram and a pouchoscopy recently, with no abnormalities. Is this what the result should be. Do I just have to deal with what I have been dealt or should I expect better. If anyone has advice on what I should expect I'd really appreciate it.
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Well living with a j pouch will never be like living with a healthy colon agian because it's just so different now going to the bathroom. It's more like a new normal you settle into. I'm just about 2 years post takedown and I'm very happy with how I feel now. It's just great not to be sick anymore so I don't mind the little annoyances of the j pouch because to me they are so minor compared to what I had to deal with with UC.
I guess it takes time to adjust.
from my experience , It's been 3 years since my Takedown surgery. My pouch is great and to my surprise it's only getting better and better even now.
It's always surprises me for the best.
from my experience , It's been 3 years since my Takedown surgery. My pouch is great and to my surprise it's only getting better and better even now.
It's always surprises me for the best.
I had my final surgery almost exactly a year ago. I too find little issues / quirks. Sometimes I find it difficult to empty and can't figure out why. Sometimes I see a little blood. I'm not sure if I'm doing well or not but I feel so much better than I did before the surgeries.
Thanks Marianne, Kobi and Jen
Can you tell me whether any of you still get pain when going, or feel uncomfortable or a little sore afterwards. I remember when I had a colon, even with UC, after I went to the toilet I felt fine until I had to go again.
Also do you have periods when you are frequent for short periods e.g. 5-6 times in 3-4 hours.
Can you tell me whether any of you still get pain when going, or feel uncomfortable or a little sore afterwards. I remember when I had a colon, even with UC, after I went to the toilet I felt fine until I had to go again.
Also do you have periods when you are frequent for short periods e.g. 5-6 times in 3-4 hours.
yes, i have all those things at times
at 3 months out, I am experiencing this too... pooping is not "smooth", discomfort and soreness afterwards, difficulty expelling the last poops and gas.
i also thought it gets better in 1 year.... maybe it takes even longer for some, or maybe those are just the "quirks" and our new normal of the pouch.
i also thought it gets better in 1 year.... maybe it takes even longer for some, or maybe those are just the "quirks" and our new normal of the pouch.