4 months past surgery - a few problems.

Antibiotics will tend to thicken up everyone’s output, whether they have pouchitis or not. Are you doing anything else to manage your output? Soluble fiber, like psyllium? Imodium or Lomotil?

I started with psyllium yesterday since i did not need it while takeing antibiotics. I also take two imodium + before going to bed and sometimes one during the day if i feel i need to. 

What makes me afraid this time is, the butt burn and the BM’s starting to smell pretty bad. Hopefully it’s nothing, those were just symptoms when they found out i was having pouchitis. 

Maybe things will get better when the psyllium begins to work. Maybe the butt burn Can be caused by the watery stool?

Psyllium works very quickly, since it just passes through the gut. Some people do have an adjustment period, though.

Butt burn, leakage etc..that stuff is kind of par for the course when people are well and don’t have pouchitis. Down to 3/4 BM per day on meds is amazing. I think it could all be normal and you just need more time. If you have pain, fever etc, it could be pouchitis. You say you pass gas? That’s pretty good too since a lot of us can’t pass gas. See what your doc says.

Bubba1028 posted:

Butt burn, leakage etc..that stuff is kind of par for the course when people are well and don’t have pouchitis..

I've never experience butt burn and I'm able to pass gas without a BM. I also have 3-4 BMs per day, rarely more than 5 or less than 2, although I do endure accidents, lucky, I use pads.

I felt like it took me a good year or so to get things kind of “normal” - I think the full healing process takes longer than we think. 

Plus there was the added challenge of finding a new normal with how your pouch operates. I highly recommend doing the FODMAP elimination diet - it really helped me in discovering what foods made me feel gassy and terrible. 

And in general try to baby that new pouch- mine does sooo much better for me when I’m taking care of my body. It lets me know really quick when I’m not eating well, etc.

Thank you guys for your answers, it's really helpfull. 

I went to my surgeon and he took a look inside the pouch and everything looked fine. He told me that as long as the bleeding was just a tiny bit on the paper, i shouldnt be worried but if it gets worse I should contact him again. Often it's just a tiny bit on the paper, but every once in a while there is also some blood in the toilet. Hopefully it's not pouchitis beginning. 

It's now a few weeks since i stopped taking the antibiotics, and my number of BM's have changed a bit. From 3-4 on meds to 5-6 without. I do feel i need HUSK for it to be this "low". 

I still feel a bit tired but starting on my new job on tuesday will hopefully help, instead of being home all the time

Nicolajs, you history is EXACTLY the same as mine! I am also 4 months post op as well!