straightforward and should help many
Burn and Irritation - Calmoseptine cream!
Nothing compares to heal and soothe protect. Many others burn more than soothe.
Warm Water enemas when irritation occurs or acidic foods burn and you need to get rid of it out of pouch because it’s irritating. Never use the saline that comes in them when purchased unless you really want to feel burn Replace with warm water. Rinse out pouch. For sores or burning skin draw yourself a warm bath, not hot. Slowly get in. Just rest 2-3x day if necessary about 10 min. Dab dry Don’t rub Reapply calmiseptine cream.
Hemorrhoids; Tucks cream is cooling and soothing. Also handy to have on hand if out and about or visiting (along with their pads) and of course the Calmoseptine
Konsyl psyllium fiber POWDER - Not tabs. Tablets do no good. I Think there was one other brand at Whole Foods comparable. Why this brand? There are no additives or other ingredients. It’s 100 percent psyllium fiber. no citrus (burning) additives to make it taste like orange juice like Metamucil or those others that only make things worse and don’t gel up Take before every meal because it is gel like it thickens in the intestine. Therefore it helps bind acids in food and small particles that irritate as they pass. There is a fine balance with fiber and it’s the fiber/water intake balance. You need enough liquids to drink it down well and have it move through your system (consistency). The more fiber, you need more liquid needed, but you don’t want it watered down too much. just keep that in mind. I take 1-2 tsp with 12 -16 oz oz of water before each meal. tou can also sprinkle some on or in your food but don’t go overboard because if you don’t drink liquid it can gel in throat and choking hazard. So Ai sprinkle small amount if food has sauce and then also glass of water with meal. Now not to confuse but recently I’ve looked into Guar Gum a powder reading it’s benefits - it also helps bind bile acids. I would not suggest replacing the Konsyl and Definately it’s a must - but I am experimenting with no more than 1/4 tsp of Guar gum mixed WITH the Konsyl and so far I think it may work even better. Your body needs to slowly get used to the guar so start small. Very similar properties to psyllium with each having good benefits for binding bike acid so that’s why I’m testing adding a little to psyllium. There are some very positive results in studies for pouch surgery patients noted using guar check out on Internet if intrigued
Possible Infection; If you feel there is an infection with increased output, cramping pain burn call your Dr. A round of Cipro does the trick for any pouchitis Ive had quickly. During this time I eat bland soluble food Green juices and tea. Pasta and Potatoes (mashed) and I don’t mind telling you if so have to purée my food then I do it in blender
General Diet on daily basis
i replaced butter with olive oil, I steam veges carrots or similar to very soft stage and chew slowly and well. White fish steamed. Mostly I stick to mild pasta dishes, potato casseroles, oatmeal cooked well in the morning - small bowl.
I never add chili powder garlic onion spices to recipes (for my portion) If I want to try occassion additives to food like nuts or berry etc I cook it soft right into the oatmeal itself to break down. I crush the walnuts annd let cook so they are not hard.
Acidic foods are your enemy! Rather than spices use mild herbs. In place of meat I fry cubed tofu in olive oil and flavor with various mild herbs (normally Italian) seasoningfor flavor and protein. I also supplement with B12 since I don’t eat meat. Chick peas are a good source of nutrition as well as mashed sweet potatoes, Avacado.
I use the Mediterranean diet and make adjustments to suit my needs when it comes to garlic onion and those burning spices and only use milder sauces making sure all is cooked well. If I add one Clove garlic I use roasted garlic roasted in olive oil and keep on hand in frig since cooking helps make it mild just be careful and trial and error but if you use yellow onion or garlic cook down soft and long to mellow them you don’t need much to flavor things a touch
Think Soft to Medium digestible food and digestible fiber - not roughage. eliminating spicy or acidic food and binding every meal !!
personally, my worst foods: pepper(s) or table pepper onion garlic chocolate EGG VINEGAR acidic fruits and vegetables, insoluble fiber, some chocolate, definately all deli meats, pickle relish nuts seeds, mayo. all processed foods, especially meats! Salad dressings condiments (usually all have vinegars or spices)
Pre-Relief tablets. These are excellent. Bottle says reduces acid by 90 percent. Not sure about 90 but they do a great job when eating a questionable meal or to have on hand out and about and you are hungry and stuck eating something you shouldn’t. They are small and easily carried and digest easily.
Get yourself a steamer.
Cook at home so you know what you are getting. Restaurants spice up your food.They Serve processed food. Usually full of grease.
Use olive oil (anti-inflammatory) to cook in, or just add water to cook items in pan (with many foods) this works Toss tender steamed veges in olive oil and herbs or leave as is. Butter is fat and causes inflammation and irritation.
If trying nuts seeds and you can soften them first or crush. Make sure you bind any nuts seeds with psyllium fiber so they bind and pass easier. IF you decide to try them I cook a little in my food. I add a little water to fry pan and place 1/4 cup berries and steam until they pop to soften for occasional pancake or frencH toast but small qty
I can not tolerate greens or raw salads! so my go to is Amazing Grass original Superfood greens powder to not miss out on the wonderful benefits of greens. It’s not cheap but convenient. If you have a high powered juicer then juice your veges (steering away from acidic additions)
Many of the premade store green juices contain acidic pineapple or similar additions as their main ingredient. Unless your blender is $400 or above you will be stuck with pulp in your glass which is not good so the powder for me is the easy convenient method
Matcha Tea (ceremonial blend) with small dollop cool whip - that’s my treat! Green matcha is one of the most alkalizing things you can do for your body-not to mention (read the amazing other things it’s good for) From what I’ve gathered you would need 20 cups green tea to get the same benefits of 1 cup Matcha. Regardless it is alkalizing and is good for you.
If you don’t like the flavor you can add the small dollop cool whip or add touch of vanilla to it or even almond milk
summary
Eat small meals- chew well and Slowly and BIND all meals prior with psyllium making sure to balance with liquids (water). Watch intake of acidic foods or insoluble fiber, nuts, seeds, spices! If using garlic onion cook way down to mild and only use a little for flavor. Always keep on hand Calmoseptine, Tucks, Konsyl fiber, PreRelief tabs, keep body alkaline with green superfood powder, Matcha Tea, or if not Matcha drink green tea. See the doctor if you think it’s pouchitis- ask about Cipro or similar.
I’m not saying any of this is perfect but it WILL get you to a tolerable living situation, unless you have something more serious going on that needs checked
They discharge you acting like in a few weeks to months you can eat what you want Totally NOT true. It’s not easy! It’s exhausting. It’s still exhausting 20 years later. All I hope is if someone reads just one of my suggestions maybe they can breathe a little easier for awhile until they add their own methods that work but this is a good start hopefully
