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do the cereals and things you eat have any insoluble fiber? this could be you one and only problem. read this like its your j-pouch bible...
http://www.helpforibs.com/diet/fiber1.asp

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quote:

Today I've eaten nothing but cereal with water for breakfast today and its 1:30. I'm going for about my 5th or 6th time today.

but you said this so i would check each cereal for the insoluble fiber content. youve been suffering for a long time so please dont look passed this. on the page i sent it says oatmeal is ok. Not for me it isnt. experiment and see if it helps. the cereal that gets me to 6 to 7 times a day is corn pops. all soluble fiber. im having problems adding other foods but im only 3 months out. this is soooo hard and i feel for you so far out...

Julie your story sounds alot like mine. I go for a pouch scope in about two weeks to see what is going on. I do pretty good on cipro but as soon as it starts wearing off, the frequency goes back up. I hope they find answers for both of us. It has been a tough year for sure.

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julie, you should be coming up on your annual pouchoscopy preferably with biopsy and all should make sense from there.

One year does seem an awful long time to be waiting it out. Hopefully the cipro will work for you. Do keep us posted.

I just came off of cipro (for pouchitis) and am currently taking high dose probiotics to keep the pouchitis at bay and 2 lomotil/day to control frequency. The combination has helped me immensely thus far.

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Hi Julie, I live in Leicester and I am always in pain, Ive had my j-pouch since 2009 and had pain, bleeding ever since, The gas is awful and so painful to go to the loo, at the moment I have some kind of blockage and am just on liquid diet, awaiting a ultrasound scan. I am constantly on Cipraflaxin but I can't say they do much for me.

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