Hi Sheila..its been a struggle for the last 12 yrs. From c diff to pouch ulcers & then my dr shen leaving Cleveland clinic. Starting all over eith new team of Drs is hard. Just had tea with a friend this a.m. she gave me a ? To ponder. " are you ( meaning me) just trying to buy time & avoiding the fact that " eventually " your j pouch is failing & you will have the surgery "?.. of course..I am!!! I've been struggling with this decision to go on another biological drug..especially since it's side effects are more extreme than entyvio for a cancer patient..but I promised myself if this stelara doesn't work..I will have the surgery.
I wish you too all the best.