I was diagnosed with UC back in 2003 and after 3 months of failed treatment had my first op to remove my colon. In the space of 4 months I had an additional 2 ops to create my j pouch but after 15 wonderful years it was removed 4 weeks ago due to failure. Predominantly RV fistulas and nightly incontinence made the decision for me. Going into the latest op I was so positive beleiving an end iliostomy would answer all my problems. That's working fine however my abdominal incision became infected and 10 days post op burst open in 4 places. I'm now packing two of the holes daily. I saw my doctor today with a positive mind that my wound looked clean and no infection but basically he said it could burst over the next 3 months regardless of how well I clean and pack. I'm completely depressed now. Will it open up further? How long to heal? Is there anything I can do to stop what he says is inevitable? Experience, support and cheering up much needed.
Diagnosed UC July 2003
Colon removed and end iliostomy Sept 2003
Loop iliostomy and J pouch created Dec 2003
Take down Jan 2004
RV diagnosed May 2018
J pouch removed and end iliostomy Oct 2018