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Reply to "Feeling tired of the symptoms"

I’m sorry this happened to you. It’s a horrifying experience, and most of us here have lived through some version of it.

If it were me I’d try to persuade the doc to start a course of Cipro without delay. If he thinks there’s any chance this is infectious (e.g. C. diff, Giardia, whatever)  then get a stool sample before starting the antibiotic.  It’s important for you to get some relief promptly, if possible. It might not be pouchitis, but that’s my best guess.

When I have untreated pouchitis it feels like the pouch is twitchy and gets active when even a small amount of stool enters it. For me the hallmarks are incontinence (first at night, and later during the day, too), as well as cramping, frequency, and urgency.

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