Reply to "Chrons disease with pouch"

I'm sorry for your pain. Please know that you are not alone. I too was diagnosed with UC at 18 years old. I had several surgeries then the pouch in 2002. 12 years later I found I have Crohn's. The pain and loss of sleep is just terrible! My Dr put me on remicade infusions. It's been about 10 months but it does seem to help. I need to go for infusions every 4 weeks without fail or the symptoms come back. My oncologist and gastro dr told me to give it two years. I have the pouch checked every year and always have severe pouchitice. Hoping the treatments help in the long run. If you ever need to talk, always feel free. Good luck to you...

1/29/1510:30 PM

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