I relocated this summer from west to east. A new job and a new opportunity. Separated for over three years, it's been official for just over one. My 15 yo daughter has been living with me for over 3 years and my son is away at university. My spouse has been abroad in her home country for over a year.
I have been taking Simponi injections for about 3 years, and I don't think it's doing much. I have been on 360mg of codeine daily since 2001. Without that, I don't want to think where I'd be.
At the best of times, I have 4-6 bowel movements a day. For the past few weeks, that number has probably doubled, and sometimes more. It seems everything runs through me at a much quicker pace. I often can't eat a good breakfast and have my next bowel movment in mid afternoon like I often used to be able to do. Now I am often going to the toilet 3-5 times through the night. At the best of times it was usually only once a night. I am suffering from the really loud bowel movements if that sounds familiar. Uncomfortable, like a motor accelerating. Unless I am at home where i alwaya use my bidet toilet, (which is rare during the day), I only sometimes use a hand-held bidet at work. My ass goes on fire regularly these days. More liquidy diarrhea than what's usual. I often feel like I have to go, but can only output a small amount and it's loud and uncomfortable. Then a short time later I have to repeat this... This is obviously inflammation, pouchitis, ot whatever you want to call it. I only moved here 6 or 7 weeks ago bit I managed to secure an appointment with a GI's assistant in the nation's capital early next week. The doctor is away right now so the assistant will see me to start the process of helping. I am not sure what to do because nothing has ever worked from a medication standpoint. It doesn't seem to matter what I eat or drink, I have the same issues.
I'm not writing this post for pity... Just trying to figure out what to do. It is definitely making my life difficult.
To complicate things, just a week or so after our move, I started suffering from horrible acute lower back pain. I was in total agony and suffering terribly. I went to the ER and got a Toradol shot. It seemed to help and settled down back to my usual chronic lower back pain that I have had for many many years. Not sure if I injured myself or what caused the agony. I think it was my sacroiliac joint...
I just can't seem to shake this non-stop diarrhea and horrible state i've been in. Usually when things get worse it goes away on its own and goes back to the normal hell I deal with. But for weeks it's been.way worse than that...