Have any of you gone through the j-pouch procedure even though the prometheus labs say indicative of crohns ?? Surgeon said test is confusing, and that for 5 years my biopsies and sigmoids all point to UC. He did say however that i might run into trouble in the future if it is crohns. Man is this confusing or what ?

I am now 26 and had colitis for 15 years. One promethus test did say that it was Crohn's, but like you - all Colonoscopies and symptoms etc mimiced Colitis. My GI said that he always looked in the end of my small intenstines during a colonoscopy and it never showed crohn's.

I had no choice in having the surgery as I developed early cancer cells - low and high grade dysplasia.

My understanding is that Colon Cancer is a much greater risk in those with UC than Crohn's. In addition to my symptoms and colonoscopy reports, this is even more evidence that I really have Colitis, not Crohn's like the promethus test reveals.

These diseases are so complex that I dont feel that a simple blood test can 100% accurately test for Colitis and Crohn's.

Best of luck with your decision.

If you colon is in such bad shape right now and you never had any symptoms that mimic crohn's disease, then I would personally go with the surgery.

I had the latest test called the IBD 7, (why I don't know I was post surgery, University Hosp.,have to run everything I guess) This test runs 7 markers, 4 for crohn,s and 3 for colitis. My crohn's all neg. UC all pos. But write up said indicitive of Crohn's. Not one of my many biopsies or the CT scan of small intestine have ever shown any sign of Crohn's.
When I questioned doc on this he said the test is about 80% accurate. LoriP

I had a CT scan that came back positive for Crohn's. The colonoscopies and biopsies showed UC. I was in the gray area, and I thought the risk of Crohn's was too high to have a J-Pouch. Also, at the time of my surgery, my ileum was inflamed.

Since then, I've had signs of Crohn's and a Crohn's-positive blood test.

If you have Crohn's and get a J-Pouch, the failure rate is about 50%. The quality of life is also reduced for most of the other half. An ostomy--while not curative--helps. It eliminates the urgency, which was one of the worst aspects of UC for me.