In case anyone needs to know someone else has been through this, you can check out my blog. That's actually why I wrote it, to document what I went through/am going through:

http://arvis.us/2009/04/04/the-diagnosis/

I appreciate this website. My son's story is about identical to yours. Was hospitalized twice in Oct 2011. The doctors tried every medication possible, flagyl, asacol, predisone, Remecaide. Entered hospital 11/18/11 had colon removed 12/19 and takedown 1/20/12. I am thankful for this website and everyone posts. It has given me a lot of useful information. The doctors seem to think just go back to your regular routine. NOT. My son is 17 and has missed most of his senior year. Was back in the hospital within 3 days after discharge for dehydration and pain. Another 3 days were now home and he has what I think is hemorroids. We have tried every know home remedy. Also, has almost non-stop nausa, cramping. Has no appetite and I having a hard time getting him to drink enought to stay hydrated. Any suggestions would be greatly appreciated. I have read a lot of the blogs and suggestions.

thanks

It sounds like he may be getting dehydrated. When I get dry mouth, nausea, leg cramps and/or a headache I start drinking electrolyte replacement drinks. I drink at least 32 ozs a day plus more if I start to feel it coming on. I was in the hospital extra days for dehydration and was told if I vomitted to get to the hospital for IV and fluids.

Please look up the signs of dehydration to see if this is a possibility.

The first months after my take down were horrible and it gradually gets beter.

I wish you all well...

Dog, thanks for sharing. Cruzin, sorry to hear of your
son's challenges, but please try to take a deep breath
& take it one day at a time. I know that's easy for me
to say, but your son's pouch is so new it just takes time
for the body to sort out the healing & the adjustments
to the new plumbing. As for the doctors, they mean well
but they don't really know as they've never lived
through it. You're doing the right thing; you're
gaining knowledge that will help with the adjustments.
Don't hesitate to ask if you have any questions; there
are a lot of knowledgeable people in here. Prayers &
Best Wishes, Steve