My redone pouch is over 10 years old and still I have chronic burning, pressure, and trouble emptying. I just spent a few days at the Cleveland Clinic (where my pouch was re-done) and after experiencing several creative approaches to looking up my rear end, here is what they found:
I have what they call primary anismus or a "paradox" in that my muscles are not working properly together to expel the poop. When I contract the pouch (as I should) I simultaneously tighten the anal opening so I don't get complete emptying. Drs. Shen and Remzi think that if I come to Cleveland for 2 weeks of biofeedback/physical therapy I have a reasonably good chance of getting rid of these symptoms. Just wanted people to know in case they have the same problems.
A discouraging note -- Dr. Remzi was particularly interested in me because they really don't know how long these redone pouches will last (and mine
was done by Fazio).
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