Has anyone else got this as well as having their pouch? My GP seems to think I may have this, as I am getting a lot of the symptoms associated eg. Bloating, diarrhoea, stomach pain and cramping and weight loss/fatigue. I know that these symptoms could be a number of things really, I'm just waiting on a blood test to see whether there are any antibodies in my blood. I'm hoping its not Coeliac, but any diagnosis would be good because I'm getting seriously fed up of everything. My pouch hasnt been right for a few months, I'm losing weight and I am worried that I'm going to waste away soon. I am eating little and often as this works best for me and my appetite hasnt fully returned following surgery 9 months ago. People keep accusing me of not eating, but the people closest to me know how much I'm eating and drinking, yet nothing is helping me to gain weight. I'm going to see my surgeon on Tuesday for a 3 monthly check up and I know she will say something about my weight and I really get frustrated when people tell me to just keep eating. I'm trying but all I seem to get is diarrhoea thats urgent and stomach pains :-(

Sorry to vent I'm just really finding it hard at the moment

we do have a member with celiacs that i know of, rachel88.
my niece has it but no pouch. the diet is extremely restrictive.
if you are not already doing gluten free start and see what happens. read the labels because the weirdest things have gluten.
google gluten free diet and you should get an idea.

Celiac disease is related to UC. We've discovered that the gene that runs in my family is probably "triggered" from the measles, mumps and rubella shot that we get when we are kids. For some people, all 3 vaccinations at such a young age is too much to handle. My father has type 2 diabetes, my brother has aspbergers, a mild form of autism, another brother has epilepsy and yet another has celiac disease. I have UC. If you do some research on effects of the measles, mumps and rubella shot, all of the diseases that my family has are the effects of the shot. Could be a long shot, and you may think I'm crazy but they are linked. One does not necessarily cause the other.

I was pouched at age 12 and diagnosed with celiac's disease at age 23. During those 11 years inbetween I had alot of symptoms that were similar to the ones your describing. I was vastly underweight and couldn't gain any no matter how much I ate, I was always tired no matter how much I slept, and I had alot more bathroom trips then I do now (these were just some of the symptoms, the list goes on and on). We thought at the time that I just didn't recover well from my surgery and these were all complications from that. For some reason in my early 20s these symptoms got worse and worse (mainly the stomach pains and diarrhea) until they were incapacitating and I FINALLY was told to get the biopsy (the blood tests aren't completely definitive from what I understand). After being on the gluten free diet for awhile everything changed. I gained 50 pounds in 3 months (of course I was power eating, like I had been for years). People I hadn't seen in awhile barely reckognized me. My increase in energy was so extreme that I developed an anxiety disorder and needed to take xannax for awhile so my brain could adjust to having the energy of a normal person. Again, I could go on and on about the things that got better. The gluten free diet is very restrictive but it is getting easier and easier to deal with and is a VERY small price to pay for the enormous increase in health it provides for celiac patients. When I had my biopsy done I prayed and prayed that it wouldn't be celiac and I was devastaed when I found out it was, because I didn't want to have to deal with the diet, but if I had known just how many of my problems it would solve I would've been overjoyed. If it does turn out you have celiac's, that means you know you'll be able to make yourself feel better. Living gluten free is complicated and inconvenient BUT IT WORKS. Thats alot better than trying a million things that don't work.