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The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  Imported Forums  Hop To Forums  General Discussion    13 year old daughter's new dx now has possible stricture

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After my daughter's upper gi the doctor thinks she found a stricture. I was watching while the test was being performed and I agree there was a definite thinning. I am pretty sure it is right above her pouch. Both the doctor and I were not sure if it was because of the prior surgery or a true stricture. Now she wants to have a ct to know for sure and if it is they will remove it. Is surgery the normal protocol for this? I am thinking that either way it is too thin (or narrow) and it isn't working properly since she has had diarrhea constantly since her first surgery 6 years ago. Also, Jan had said that her back pain was possibly due to arthritis. Does this type of arthritis affect the ankles too? Sorry for all the questions. I haven't talked to her dr at all yet about much and feel out in left field at the moment.

Karen
 
Posts: 13 | Location: Chico, CA | Registered: August 02, 2008Edit or Delete MessageReport This Post
Picture of kathy smith
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Karen, I'm not sure how they will deal with the stricture (if it is a stricture).

Is your daughter on Cipro or Flagyl? If so, that could be causing the ankle pain and she should stop taking it.

I remember back when I was your daughter's age that I had ankle pain. Back then (the dark, dark, dark ages), it was called 'growing pains.' I'm sure there was actually a reason for the pain rather than that catchall term but no one was ever too concerned about it. And it did go away. I also had horrid knee pain. I could hardly bend them.

Good luck and please let us know how things are going.

kathy Big Grin


***********************************************************
Lately it occurs to me, what a long strange trip it's been..... Grateful Dead
 
Posts: 6815 | Location: california | Registered: June 30, 2000Edit or Delete MessageReport This Post
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Hi, Karen, long time. Sorry about the recent developments. From what I have read, I think peripheral arthritis can affect the ankles and that surgery frequently is done to remove severe strictures. If you have any doubts, I would get a referral to see Dr. Heyman at UCSF for a second opinion. (I can't remember whether you have seen him before or not.)


Thomas' Mom
 
Posts: 3594 | Location: Rocklin, CA, USA | Registered: July 16, 2000Edit or Delete MessageReport This Post
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Kathy, Morgan is not on any meds at all at this point (with the exception of 16 mg imodium a day witch doesn't help much). Her dr wants to wait until all tests have come back. Although she does have growing pains on occasion, her ankles hurt at the joint. I guess it could be growing pains though. We'll have to wait and see.

Connie, How is Thomas? I haven't read too many back posts but I will. Morgan is seeing Dr. Cox's fellow from Stanford, Dr Yinka Davies, in Sutter. I really like her and she is very thorough. So she isn't going to put her on meds or make a plan of attack until all test have been taken.
Karen
 
Posts: 13 | Location: Chico, CA | Registered: August 02, 2008Edit or Delete MessageReport This Post
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