Just wondering how many of us have gone back to an ileo, either permanently or for an extended period of time...

There's me, Shell, JasonPA, DMC, grateful, Bill and Winnie soon to join us...

Did I forget anyone?

I'm scheduling my reversal back to the perm tomorrow- going to shoot for early March...

//Todd
(Mostly so I don't have to continue to get grief from Jason on a daily basis!)

Loving life, loving my choice, back being a trooper, playing ice hockey and in the gym.. all 7 months after going back to my end - YAYAYAY! LOL!

***BTW Todd... it will never end LOL***

Count me in. I feel so much healthier now with my end. It's like night and day.

Best decision I ever made (despite all the complications) and feeling the best I have in years (touching wood here) in ages.

My only regret is that I didn't throw in the towel sooner. But that was down to pressure from my surgeon to "Let's just try one more thing...... " I could have saved myself at least 7 of my 9 full laparotomies and 9 years of misery. Ah well.... you can't turn back the clock!

Life is good with Wee Willie.

Shell

And me! I do still lurk on here and occasionally throw in some questionable advice.

Count my husband Joe in. He just went with end ileo in November. Pouch too damaged and new pouch was not possible. He is much better. He is loving eating and drinking anything he wants. I told him if he keeps it up, he will need gastro bypass in a few years LOL, just kidding. But it is nice to see him living among us and not in the BATHROOM> I wish everyone could have a good pouch, but if you dont, LIFE DOES GO ONE WITH AN ILEO!!!!!

I never had a j pouch, but I have had my permanent ileo for many years - it's 32nd birthday is in two weeks time

I am still in the deciding phase. I have been to Cleveland Clinic, turned down for surgery, have multiple biopsies that are indeterminate, am living with"Oscar" but still want to consider a J-pouch. So I do have an end ileo but today would be glad to give it up!

Long term (possibly perm) end illeo for almost 4 years now and doing great. Wasn't my decision as my pouch perforated, but everything is working out so far.

Yep, won't have a true "End" ileo until next week. But I'll be rolling with the gang soon.

Todd, don't let the Jason grief get to you. He just has an unusual obsession with end-ileo's...

That and FORMER ROCK STARS BILL!

Brother, you are too funny.

(and I won't grow my hair back for you...)

I'm another ender as of 2 months ago and couldn't feel better!!!

Hi Jill and All, I have had my "temp." ileo for almost 8 years now because of a bad fistula. Came close to reversing a year ago after some surgeries to correct fistula again, but it has opened up again. SO just hanging out with my loop and have no problems with it. Not sure what I am going to do, I have lived like this for so long and feel great!
Bill, first who is that handsome rockstar in your picture????? Second glad to hear you are doing well, what made you decide to go to a end? Is the loop giving you trouble? ANd are you leving the j-pouch in??
Happy Holidays all!