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This is a replacement/new beginning for a thread that used to be around for quite a long time. It is an unscientific, anecdotal list of surgeons that members of J-pouch.org have been very satisfied with. It is not alphabetical, nor is it arranged by geographical area; due to the nature of discussion boards, it would be impossible to maintain the list in that order anyway.
I am starting this list with the original "seed" postings that started the list many years ago. I tried to keep the list updated, but admit to falling behind near the end (of course, I didn't know it was the end, lol!) My hope is that people will read through the list to see if their doctor is already on it, before adding a redundant listing. It is also my hope that people will add doctors that they have been very happy with, who are not already on the list, and that this list will get bumped to the top of the discussion area every once in awhile so that it doesn't get lost again! If anyone sees doctors who are no longer in this specialty, or who have moved their practice, please send me a private message with the new information and I will edit the entry. Once this list goes to several pages (and I can tell you from past experience that it will), please list by page number any information that needs updating. I hope that people with all types of continent diversions and ileostomy's find this list helpful! Dave H Is there a number 1 or group of top colorectal surgeons (for j-pouch) in America? I remember when I had an amnio years ago, the doctor was actually known as "Mr. Amnio." Is there a Mr. (or Ms.) J-Pouch? Patchwork Girl I, being a satisfied patient and thus very biased, would say Dr. Becker of the Boston Medical Center. I think he is a pioneer in the field, a great surgeon and a good and kind man. Regina Dr. Lee Smith, Washington Hospital Center, Washington DC. Bedside manner totally sucks but the man works wonders with at knife. chris5-oh I think some of us are on the wrong coast based on your email address but I must (anyway) highly recommend Dr. Donald B. Colvin who performs his magic at Inova Fairfax Hospital in Fairfax, Va. His office near the hospital is at 8316 Arlington Blvd., Fairfax, Va. 22031 Suite 401 Tel:703-280-2841 He has another office, which is also where his ET nurse is, in Reston, Va. http://www.fairfaxcolorectal.com/ These might be a good place to start for anyone looking to find a doctor or surgeon: You can find doctors that are members of the CCFA (Crohn's and Colitis Foundation of America) at: http://www.ccfa.org/physician/?TMI=4 and this: List of Colo-Rectal Surgeons: http://www.fascrs.org Dave H Eric Fonkalsrud at UCLA Medical Center. 310-825-6712. He has been my daughter's surgeon for 11 years now. I can't say enough good things about him. He was voted surgeon of the year by the Chrons Colitis Foundation of Southern California in either 1998, or 1999. ConnieT When I did my research for this surgery, I found that the Mayo Clinic and the Cleveland Clinic were rated among the top. I chose Cleveland because it was the closer of the 2. Dr. Remzi and Dr. Fazio did the surgery and I have had very very remarkable results. Pretty textbook recoveries, very little buttburn, and after 1 year, 2-3 bm's a day...and no urgency feelings and no leakage. Cindy B-N I had my surgery done by Dr. Randy Crim at St. Paul in Dallas, he was trained at Cleveland Clinic. He is very professional and I like his partners also. Lucy Dr. Karen Deveney at Oregon Health Science University in Portland, Oregon did mine. What a great lady. She has done well over 300 operations of this type. She usually gets the more difficult cases when people have waited too long before having the operation done. (She does a lot of cancer operations when she has very little to work with and some patients have wasted away and too far gone before she gets them.) Clint I would have to say that Dr. Jeff Harnsberger, from the Dartmouth Hitch**** Clinic in Manchester, NH is the best. I couldn't have found a nicer and more understanding surgeon. --Samantha (Sammie) My surgeon is my guardian angel. Dr. Jeffrey Milsom of Mt. Sinai Hospital in New York City performs colectomies and J-pouch surgeries laparoscopically. I have no scars, just little "scratches", and no complications. He is wonderful and is one of only a handful of surgeons that performs these surgies this way in the world. Zabelle I used Dr. Ky who is Dr. Milsom's partner at Mt Sinai. Wonderful caring surgern. By the way Dr. Milsom comes from the Cleveland Clinic. Susan (AllyKat) Hi- My surgeon was Dr. Bruce Harms of the University of Wisconsin-Madison. He has performed over 500 pouches. He is a wonderful doctor who does excellent work. I am not sure waht the magic number is. I would definitely err on the side of caution as experience does play a role in many operative decisions (ie. what sort of pouch--s,w,J--to make.) Phil S My surgeon was Dr. Harvey Sugerman at the Medical College of Virginia, in Richmond. Great staff, bedside manner, and especially his work! Vicki Hi! I live in Findlay, Ohio. I had step one of my surgery 3 weeks ago tomorrow. It was done by Dr. Tracy Hull at the Cleveland Clinic. She has done more than 100 j-pouch surgeries and spent one whole year doing only j-pouch surgeries. I had a very successful surgery, so far. She was trained under Dr. Fazio at the Cleveland Clinic. Cleveland is well known as being one of the best colo-rectal hospitals. Being in Columbus, I think it would be worth the short trip to Cleveland to meet with a surgeon there. Email me if you have any questions. hambo127@aol.com Susan H. The surgeon I had at MT Sinai hospital in NYC was Dr.Bauer. When I had my jpouch done, he told me I was his 1,101 jpouch patient! I think that qualifies him as an expert! Have had no problems, either... Good luck, Sharon Dr. John Rombeau, University of Pennsylvania--absolutely the best of the best!! Lisa Booth Have to agree the Lahey Clinic in Burlington, MA is the way to go. I had Dr. Patricia Roberts- perfect outcome. They have only single rooms. Also, the ET nurses, especially Donna are a life-saver, couldn't have made it through without her! Three of the colo-rectal surgeons there received the "Best of Boston" award. Lauren Sure I am biased but my Doc was and is fantastic. Dr Harry Kahn,M.D.,M.P.H.at Evergreen Colorectal, PLLC in Kirkland,WA. His number is 425-899-6300. Young, talented, great bed side manner, listens, cares, and I would recommend him to anyone. Guess I already have.... Erik S When I saw Dr. Fazio recently he referred me to Dr. Zane Cohen (Toronto), Dr. Bob Beart (USC) and Dr. John Pemperton (Mayo) three other Doctors also Top in the field... Pouchperson Dr. Roger Hurst from the University of Chicago. A great doctor who has wonderful bedside manners and very caring. FartblossomDr. Robert Jacobson and Dr.Paitoon Tulanon at Baylor in Dallas. I didn't choose...just sent over to them and I am a satisfied customer. (If you have surgery in the DFW Metroplex, let me know - I'll come visit!) Kim I would happily recommend Dr. Pemberton of the Mayo Clinic in Rochester, Minnesota. Jason has only had the first step of the two step procedure so far but we were both very impressed with him and his team. Very courteous, patient, helpful, and concerned about the whole person. Sarah (red_radioflyer) Dr. Jorge Marcet at Moffitt Cancer Center & Tampa General Hospital in Tampa Hospital! This man is incredible! He saved my DH's life! We truley love him! Amanda A. (Anthony's Wife) I'd like to see Dr. Peter Marcello of the Lahey Clinic added to this list. I'm two weeks post takedown and going to the bathroom 6 - 8 times a day. I sometimes sleep through the night and have had no accidents. He's great! Also I second the comments on Donna Loener (ET nurse - Lahey clinic). She's awesome too! Kyle My surgeon was Dr. Scott Goldstein at Thomas Jefferson University Hospital in Philadelphia. WONDERFUL doctor...young, funny, great bedside manner, and an absolutely amazing surgeon. I had my takedown 6 years ago and now only see him for routine yearly exams. BESSW Hi - I've posted about him before, but I think Dr. Peter Mowschensen at Beth Israel in Boston is the BEST surgeon for j-pouch surgery. He's also really nice and is always around to answer any questions you may have. I believe he's performed over 400 of these surgeries. I've had my pouch for almost 2 years and I've be extremely happy. - Lisa Dr. Scott Goldstein at Thomas Jefferson University in Philadelphia! Great surgeon, good person, sense of humor and always, always available for phone calls, questions, etc. Maureen While my surgeon was not an acclaimed colorectal surgeon, but a general surgeon, he was the only one in the Kaiser system in my area with experience with j-pouches when I needed surgery in 1995. Dr. Larry Dennen did excellent work and showed himself to be very forthcoming and knowledgeable. I have seen a lot of surgeons, and he was up there with the best I've seen. I was able to have my surgery 30 minutes from my home in Fremont, CA and be fully covered by my HMO (no charge). Jan Dr. Rolando Rolendelli. Temple University Hospital/Northeastern Hospital Philadelphia, PA Professor of surgery @ Temple U. M.D. F.A.C.S Address: Broad & Ontarios streets, 4th floor parkinson pavilion, 19140 zip code. office # (215) 707-2072 E-mail: rolando.rolandelli@temple.edu Board certified colorectal & general surgeon. EXCELLENT EVERYTHING !!!!!!!!!!!!!!!!!!!!!! Fueled_By_Stool2778 I have to agree with Lisa 27. Dr. Mowschenson, in Boston, is fabulous! There are a few of his "graduates" on the board here and I think we are all satisfied customers. Kara (mksalvas) Dr. Coller at Lahey Clinic, Burlington did my 3 surgeries. And he's great!! I have had no real problems. I go about 6-8 times a day. I also think Donna Lohner is a great ET nurse there, along with Kerry. ~Heatha (Poucher 916) I am very glad to see that Dr. Peter Marcello from Lahey in Burlington, Mass made the list. He is an incredible surgeon and a very nice mad to boot. Also, he trained at Cleveland Clinic and does the pouch surgery by scope whenever possible. I have had great results from my 2 operations. I also have great control and usually sleep all night without having to use the bathroom. Lahey Clinic is a first rate facillity with all private rooms and a wonderful Colon-rectal floor with most of the nurses specializing in ostomy/pouch care. Also ET nurses, Donna and Kerry are tops and they hold support meetings 4 time a year for all of us Pouchers! Terri (Tazzy) the last reply was supposed to say that DR. MARCELLO is a very nice MAN (not mad). I can't type...uugg..... (Tazzy) Dr Moreye Nusbaum, M.D. Professor of Surgery University of Pennsylvania 39th & Market St Philadelphia, PA 19104 215-662-8026 If you go back to the home page and click on support you'll see a picture of him with Grace Williams. According to the nurses at Presby he has golden hands. He certainly did an excellent job with myself and Colin. Peggy So, how come nobody has mentioned the great Dr. Fazio, trainer of j-pouch surgeons and fixer of botched j-pouches. He fixed mine at the Cleveland Clinic after 2 1/2 years when nobody could figure out what was wrong with me. But, I am very jealous of Cindy B-N saying she poops 3 times a day -- I am closer to 10. DebbieMo Dr. Dayton at the University of Utah hospital, he is fantastic, he has great bedside manners, and he will sit down and talk to you as long as you need to talk, and he will awnser any questions that you have, to me he is the best surgeon ever! Dusti (Chantel) lol @ everyone bragging about their surgeons. I guess that's better than everyone complaining about them, though I didn't get a colorectal surgeon, in retrospect I suppose I could have, but my pediatric GI, Dr. Rothbaum (CCFA's Physician of the Year in 1998- ok I gotta brag too, I like him ) at St. Louis Children's Hospital (ranked by US news as 6th best pediatric hospitalin the US- hehe, I'll stop now) referred me to one of the general pediatric surgeons there, Dr. George Mychaliska. He's only 39 or something, but I really think he's a great doctor, not only very intelligent and careful, but polite and friendly, and he talks to me like an adult (I'm 18 BTW) which matters to me alot, since I like to consider myself a fairly intelligent person and do not appreciate being talked down to as if I'm a 3 year old. I've noticed alot of pediatric doctors have a habit of that. (Although, I'm sure there's a lot of doctors in general that talk down to their adult patients as if they were 3 year olds) but anyway, I was really impressed with my surgeon when he made special arrangements to see me on a Saturday because I was having problems, and took the time to call my house himself a number of times. So even though he's no a colorectal surgeon and hasn't done 3000 j-pouches, I still like him alot and would reccomend him (well, to anyone who still meets the requirements to go to a pediatric hospital ) Kate (Kate1026) hi, if anyone is looking for a pediatric gi surgeon we went to dr. steve dolgin at mt.sinai hospital in nyc not only has he performed 100's of j-pouch sutgeries on the ped. population but the bed side manner was phenomenal and i can't say enough good things about nan his nurse practitioner we are more than 2 years post-op and i just got another follow up call from her the other day. christine (nick's mom) Hi I noticed that there aren't many pouchpeople from the Midwest other than Kate from St. Louis area. I'm from Appleton, Wisconsin and Dr. Jeffrey Klingbeil from Fox Valley Surgical Associates did my 2-part jpouch surgery. I would recommend him to anyone in the Fox Valley Area. He's the only one in this area, and I'm sure there are more around Madison & Milwaukee that do this surgery. He's caring, very personable, and has a great sense of humor (which really puts a person at ease). His address is 1818 N. Meade St., Appleton, WI 54911 I had my pouch surgery on Sept. 4th. judyfuer A giant thanks to Dr. Robert Beart of the University of Southern California. A brilliant surgeon and a fine man with a sense of humor. His bio is as follows: http://www.surgery.usc.edu/divisions/Cr/faculty.htm Suebear I don't know how many people from Alabama might need a surgeon, but Montclair Surgical Associates are the best in the business here. Dr. Pennington, Dr. Bishop (my primary surgeon), and Dr. Thompson are all top-rate, very personable, and quick to respond. Between the three of them, they have trained at all of the top places for colo-rectal surgery. They do other surgeries as well, but colo-rectal is their speciality. They also all have great personalities (seems to be rare in surgeons (overall) in this area), which comes in handy, and they're all Christians, which is very important to me. I would highly recommend this crack team to anyone without hesitation. Elizabeth (mom2angels) Suebear, great info you have posted!! I'll read it all after I get home from the studio. To others that have posted on this subject. I also had Dr Beart, I think he must have performed a terrific job on me as I have been so fortunate with my J-pouch. 2yrs 9 mos since take dn and no problems. Maybe I'm fortunate cus of my genes as I'm older than any of you, but I really think Dr Beart had alot to do with it. Gloria (dgloria5) can't believe I didn't see this post sooner. I've been a poucher for 6 years and haven't had ONE problem...my surgeon was ALAN HACKFORD, Chief of Colorectal Surgery at Boston Medical Center in Boston, Ma!!!!! GREAT IDEA Dave!! Laurie Let me put my vote in for Dr. Ian Lavery at the Cleveland Clinic. You can see him operating on the colorectal web page at www.clevelandclinic.org. He's the one being honored at the annual Turnbull Symposium in a couple of weeks. I'm not the only one who thinks he's great! MJ Hygienist Hi all, Dr. James B. Williams II in ABQ, NM is my pal, my doc, and my saviour. he fixed me. plain and simple. he's one only 2 Colo-rectal surgeons in NM...his partner is the other one...so, i knew i was getting very good treatment... adios, ted (Ted Frigillana) Dr. James Becker, chief of surgery at the Boston Medical Center has done over 750 surgeries of this type. I believe he is the most experienced surgion in the world at ileoanal anastomosis (pull-through operation). I recieved excellant care there. If you want the most experienced surgeon, Dr. Becker is the man. stitch-in-time-saves-nine I wasnt planning on replying to this message then thought who better to reply to it. I have first hand knowledge it seems of most every surgeon in the US. Well at least thats what it feels like. Four surgeons(that I can remember, never know what all that anestecia{However do you do spell check in here?} does to the memory) and many residents that have gone on to be surgeons. I can tell you that from talking with each of the surgeons Dr. Fazio is considered the gold standard. For those of us not on the East Coast(sorry, anything East of Colorado is East Coast to us Californians), Dr. Beart and Dr. Garcia Aguilera are highly recommended by Dr. Fazio. I never had Dr. Fazio work on me but I did have Dr. Beart from USC and Dr. Garcia Aguilera from UCSF. Both seemed to have a high level of confidence(well most doctors do even when they may not deserve it)and skill. Bedside manner of both were just ok. Some days better some days worse. As a side note I loved my most recent surgeons bedside manner. Dr Varma from UCSF though she is not as experienced as the others. I do think it is critically important to do your research and get the best surgeon you can. Complications can always occur, but they can be compounded by surgeons without a high level of expertise or skill. Mike S (Single Guy) Dr. Julio Garcia-Aguilar of the University of California San Francisco (UCSF) Medical Center performed both stages of my j-pouch surgery and I have been extremely happy on both occasions. To his credit, Dr. Garcia-Aguilar was very supportive when I was at my lowest point with UC actually encouraging me to try alternatives before rushing into surgery. When those alternatives proved futile, Dr. Garcia executed with precision and the utmost professionalism. While relatively new to UCSF Medical Center, he brings with him a wealth of experience. It is my understanding that Dr. Garcia lectures across the globe on colorectal surgery and colorectal cancer. Rob J I had both stages done by Dr Mark Welton at Stanford (California). At 4 months post takedown the surgery has worked out better than I had hoped, and my impression is he did a great job with the knife. Bedside manner is reasonable and he recently moved to Stanford from UCSF. I would highly recommend him based on my experience. Andy P I've only had one of the steps completed at this point, and have about 5 more weeks till the takedown. But so far my surgeon, Dr. Richard Devine of the Rochester, MN Mayo Clinic has been wonderful. I had so many problems after my first surgery and him and his nurse Sheila O'Reilly were great. Jess What about Joel Bauer at Mt Sinai. He did Queen Elizaberth, Rolf Benersche (sp?) several other pro athletes. Great support team-made my wife and mom very comfortable. list is incomplete without him 2pennplaza Hey! 3 year old pouch here... done by the fabulous and always-available Dr. Peter Mowschenson of Beth Israel, Boston. He lets me email him and twice he responded to me while on vacation - once all the way from London! Extremely devoted to his profession and his patients. Wonderful man, amazing surgeon. No surgical complications for me, NEVER any leakage or accidents, 4-5 bm's a day. Pouch is perfecto! Recently having some issues with adhesions but I don't believe that has anything to do with the surgeon - just my sh!t luck! Aleta Dr. Bertram Chinn of Associated Colon and Rectal Surgeons in Edison, New Jersey. Practices at Robert Wood Johnson, Mullenberg and JFK Hospitals all in Central Jersey. Both he and all his associates, partners and fellows were wonderful with my surgery, care and follow ups. pamiu92 If you're in Southern California and USC is just too far away, give Dr. Daniel Ng in Newport Beach a call. His hospital is truly top knotch and feels more like a hotel stay than a hospital. His technique is great, responsive to all my questions and wishes, and has AWESOME bedside manner. I've referred two members to him with greta results! Twitt Ditto what Twitt says about Dr. Ng! He is one of the most compassionate physicians I have ever met. In addition, he is one very talented surgeon and his partner, Dr. Rad (great name, huh?), is also wonderful. CeCe Rave, rave and more raves for my surgeon. Dr. Jacque Heppell at the Mayo Clinic in Scottsdale Az. It has been over a year and so far not one complication. I feel terrific......Love this man...A genius in my opinion. dcgc I have to add my surgeon(s) to the list. I had two and loved both of them. Dr. Elizabeth Breen at Brigham & Women's is the best!!!! She was my sister's surgeon, as well. I also saw Dr. Ronald Bleday (Brigham & Women's), who is awesome, as well. He did my adhesion/blockage surgery & take down, while she was on maternity leave. Both of them are very knowledgeable, skillful and excellent If you go to www.brighamandwomens.org you can do a search and get clinical background & contact info on them. Maddie (mscatz) This message has been edited. Last edited by: Dave H, Live in such a way that you leave things better than you found them! |
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I didn't see my doctor on the list and wanted to add him! His name is Dr. Lewis Jacobson at Indiana Universtity Hospital in Indianapolis. I love him! He is very professional, has fabulous bedside manner, explains everything clearly and is very knowledgeable when it comes to j-pouches! He's the best!
Jessica |
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Dr David Schoetz at Lahey Clinic...one of the original surgeons in the US performing the procedure over 20yrs ago! Has trained several of the surgeons listed on this board. I had awesome results, even though I was extremely ill beforehand. Donna Loehner is the ET nurse for the CR group at Lahey.....fabulous!!
You have to get thru the clouds to enjoy the sunshine |
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My surgeon is not on the list yet.
He was Dr. David Larson at the Mayo Clinic in Rochester, Minnesota. I was completely happy with him as a surgeon and with Mayo Clinic as the support services. I highly recommend him and Mayo Clinic. Rick ---------------------------------- KAAAAAABOOOOOOOOOOOOM!! |
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Dr. Gordon Telford at Froedert/Milwaukee Medical College in Milwaukee, WI. Great Surgeon!
The secret of health for both mind and body is not to mourn for the past, nor to worry about the future, but to live the present moment wisely and earnestly. |
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I have to add Dr. Phillip Fleshner at Cedars-Sinai in Los Angeles to this list. My daughter is just a month post takedown, and you wouldn't even know she had a pouch. He is an excellent surgeon.
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Dr. William Wise, Columbus, Ohio. A little too quick when it comes to tapering a patient's Prednisone, but a competent surgeon.
Diagnosed with Chronic Ulcerative Colitis in 1986. First-step of 2-step j-pouch surgery January 9, 2006. Takedown June 16, 2008. |
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Thanks for posting this again.
Although my surgeon Dr Malcom Goldsmith has long since retired and the other, Dr David Jagelman has passed. They were the best. They trained with Dr Fazio and all were good friends(Aussies). After that it was a CCF fellow, Dr Jay Singh, who is now at Piedmont in Atlanta along with Dr Eric Weiss , CCF Weston, FL who saved my j pouch. Both are excellent surgeons. Holly |
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Dr. Paul Wise at Vanderbilt in Nashville, TN. AMAZING surgeon and person. I did a lot of research before I chose a surgeon, and met with several before deciding on Dr. Wise. When I met him I KNEW this was my guy. He explains things so well-draws diagrams and everything! Also a truly brilliant man. You can access his "resume" on Vanderbilt Clinic's website. He is also so so so nice. Honestly one of the nicest men I've ever met. Never patronizing, excellent bedside manner, and funny! He did my surgery laproscopically and I am so pleased w/ the results. The only truly noticeable scar is the stoma scar. I had such an easy time w/ recovery too. I'm 7 months post reversal and am in the best shape of my life. The people in Nashville are super nice-talking about real Southern hospitality here, people! Steer clear of this one ostomy nurse though. I can't remember her name (I affectionately called her Nurse Ratchet), but she's from Michigan and has a very distinct accent among the smooth southern drawls. Ask for Bonnie or Martha for ostomy nurses-sweetest women in the world! Dr. Wise's partner, Dr. Herline did my friend's surgery and she is doing just as well as I am. I highly recommend both of these surgeons. Added bonus: Green Hills Mall (I think is the name??) I always get so excited anytime I can make a trip down there for an appointment (which is not often at all) so I can go shopping there!
Liz UC-Diagnosed 1998 3 Step J-pouch-May, Oct. and Dec. 2005 Diagnosed w/ Crohn's in Sept. 2006 |
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Dr. Daniel Ng in Newport Beach is still there and as wonderful as ever (I had an appt. with him this afternoon.). However, his former partner, Dr. Rad now has his own practice in Newport Beach. I haven't seen him for awhile but my memories of his care while he was on call as Dr. Ng's partner are very, very positive!
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Dr. Douglas Rosen
http://www.charlottecolorectal.com/ Charlotte Colon & Rectal Surgery Associates 2015 Randolph Road Suite 201 Charlotte, NC 28207 Phone (704) 333-1259 Fax (704) 333-0371 FAP Diagnosed 7/28/04 First Step 8/10/04 Take Down 12/14/04 |
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Dave already mentioned the Fairfax Colorectal group in northern VA (Fairfax and Reston) but I would like to add in addition to Dr. Donald Colvin, Dr. Paul Savoca, who was my surgeon. I got very lucky to have him, as I didn't have time to research doctors before my colectomy. If you're in Northern VA, I highly recommend Dr. Savoca, who works out of both Fairfax and Reston Hospitals.
UC Dx March 2004; Colectomy 3/31/04, j-pouch formation 7/7/04, takedown 10/13/04 |
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Dr. Saclarides, Chicago, Rush University. Head of dept. Could not come recommended any higher, words cannot explain this cool dude who gave me my life back
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Jose Dominguez
Cox Health (Ferrell-Duncan Clinic) Springfield Mo. http://home.coxhealth.com/clinicpages/profiles.asp?Key=1950 He is the best |
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Dr. Susan L. Gearhart
Asst. Professor of Colorectal Surgery, John Hopkins Hospital Baltimore, MD. Specializes in j-pouch surgery (two-step procedure) |
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