please support our sponsors
Register to post messages
chat | guestbook | ibd links | dietary guidelines | faq's | donate | mailing list | support
j-pouch people
The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  Imported Forums  Hop To Forums  General Discussion    When do things get "normal" again?

Moderators: Bill J, Dave H
Go
New
Find
Notify
Tools
Reply
  
  Login/Join 
kas
Posted
I realize that things will never be like they were before I was diagnosed with UC, but I had my reconnect surgery in November and still not doing well. I still feel like I am back at the beginning of the disease having flare ups? Does anyone know how long it will be before I am not racing to the bathroom 15 to 20 times a day?
 
Posts: 8 | Location: Illinois | Registered: January 12, 2008Edit or Delete MessageReport This Post
Posted Hide Post
Hey Kas - try not going at every first urge. You may be able to "train" your pouch and anal area to be less sensitive to pressure. When I first had takedown - I waited to weeks, then started trying to 'hold on' as long as I could between bathroom visits. I kind of made a game out of it by seeing if I could go longer and longer. Doing this helped desensitize to the unfamiliar urges of the j-pouch and I believe helped me a lot cause now I can go 12 hours without using a bathroom if I really want to.
 
Posts: 469 | Location: Oregon | Registered: August 25, 2006Edit or Delete MessageReport This Post
Picture of Kwad rider
Posted Hide Post
Kas,
Check your diet. Start with "safe" foods like mashed potatoes and rice then slowly add other foods one at a time. If you need to keep a diary of what you eat and what you feel about 4 hours later. I did that and found a lot of what I was eating was keeping me in the bathroom more than I really needed to be. Good luck and I hope you find what works for you.
 
Posts: 83 | Location: Coventry, CT | Registered: December 24, 2007Edit or Delete MessageReport This Post
Picture of Martiangirl
Posted Hide Post
Hi Kas
I had my takedown on 6th November but for me things have settled down to 6-8 trips a day and sleeping through the night. I do tend to sit there for say 10 min at a time sometimes to make sure i empty properly. I had been straining too much in the last month or so and had gotten a small bit of inner pouch mucosa to protrude a little so for me as of now straining is off . I was advised to eat more fruit and veg to make it easier to emty. This may not apply to you.
I wonder what you eat to make it so urgent .Do you still have wattery output?..have you considered possibility that you may have pouchitis?


Love your bumSmiler
 
Posts: 516 | Location: London - England | Registered: June 16, 2007Edit or Delete MessageReport This Post
Posted Hide Post
I had the one-step J-Pouch surgery at the end of June, 2006. I think I started off going to the bathroom around 12-15 times per day. This gradually decreased over the next two months to 6-8 times per day. At this point, I go around 4 times per day.

I don’t recall working to delay going to the bathroom. Each day I did take a walk, which I gradually increased. I feel that this low-impact exercise helped my body to recuperate faster and to learn how to deal with its new plumbing.
 
Posts: 1 | Location: New York | Registered: January 13, 2008Edit or Delete MessageReport This Post
Posted Hide Post
It does take a good year to heal and get to "normal"
 
Posts: 899 | Location: Fl | Registered: August 03, 2006Edit or Delete MessageReport This Post
 Previous Topic | Next Topic powered by eve community  
 

The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  Imported Forums  Hop To Forums  General Discussion    When do things get "normal" again?

copyright the j-pouch group 2006-2007