Why do j-pouchers sometimes get butt burn after takedown, but not during the temporary-ileostomy phase before takedown? At least, I haven't experienced butt burn during the temporary-ileostomy phase.

I'm one of those people with a loop ileo whose stool (some of it) bypasses the ileostomy and exits my body the old-fashioned way, along with mucus.

Any ideas?

I think it is because you have A LOT more stool passing through and a lot more often after TD. Also, there is more time for mucous to build up when you have a temp ileo. I also had this happen.

I think its because of the stomach acid. When I had my ileostomy, I used to cringe at the fact that it burned like the dickens when the stoma was active. Similar situation with the pouch connected to the rectum.

However, I found that foods that cause a more liquid output tends to burn more, so I use immodium and bulk forming laxatives to help bulk things up. Also, caffiene is a NO NO!!! If you must have a coke or a coffee, go for decaf.

Best of luck

I was having a lot of trouble with BB also, but I started taking Protonix for what was possibly a stomach ulcer, and one of the side effects was that it cut down on the acid that was in my stool. I don't know if it would work for you, but it might be worth a shot. Also, I was told by another Dr. that Prilosec might also work just as well as the Protonix and it could be gotten over the counter.

I must comment on the remark above about coffee. Again the same old tired phrase "everyone is different" I drink coffee almost everyday(not decaf) and zero butt burn. The reason I felt the need to comment on that is because people here, myself included, are so desperate for everything to go right and not have any problems, that I think we take things others say as fact and will avoid something because someone else has a problem with it. That is just simply not the case. I think everyone should be open to experimenting and maybe will find that they don't have to give up something they loved before.

I do want to point out that this is definitely not an attack or I am not trying to start a long discussion about this. I just wanted to make that clear for someone who is fresh after TD so they don't limit themselves and be afraid to try something.

I second the burning stoma comment. Mine was really painful if I ate things that were vaguely acidic. I get less BB than I had "stoma burn". I only really passed mucus the old way while I had my stoma. And coffee is no problem - one of the joys of not having active UC anymore, I can drink coffee again!

Rudolph,
Hi there, my name is Travis Watt and I live in Blacklick. I just had my take down surgery on July, 9th and my first surgery was on April 5th.
Just wondering who your surgeon was and where you did everything. If you ever want to talk to anyone about this please shoot me an e-mail. I am home now recuping from the take down.

twattfour@yahoo.com

Anyways if I don't hear from you, good luck with everything. Twenty years is a long time, I don't now how you kept your sanity if you did.
I had UC for seven years.

Thanks,
Travis

I drink about 4 cups of coffee a day and they have never given me problems. My doc told me it was the source of my problems so I stopped drinking it for like 2 weeks. I felt miserable during those two weeks, so I've been drinking as much as I please. However, iced coffee is a huge no no for me. I'm not sure why, but it gives me a wicked bad stomachache.