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Dear Friends,
case history: My post takedown on May 2007. Begging frequency was very bad but when I tried to take pentas supp getting better, then stopping pentasa and starting flagyl (5O0 *3 a day) things was perfect, when I reduce flagyl to 2 per day I still doing perfect for two months after that things getting worse leakage and pressure I stopped the flagyl things getting little better but still leakage and so on (frequency 8-13 per day. I can control but with some lockage. Conclusion I get better when I rely on medicine I can travel, work..etc. Prof Nichols consultation: I have been recommended for Prof Nichols in London to see his opinion. I saw him last week and I do Contrast Enema x-ray, colonoscopy. Prof Nichols report: "Mr.AL-Essa has a significant rectal stump. Thus he has effectively a pouch-rectal rather than pouch-anal anastomoisis. The rectal still inflamed and is therefore responsible that he has when he does not take metronidazole and pentasa. The problem can be resolved with prospect 90% success. And the doctor told me you got two options to rely on you medicines or to have salvage surgery with risk of failure of occurrence pelvic abscess. And he wants me to decide in this week and he will do it soon." Really I am hesitate to rely on medicines or to have salvage surgery. What do you think friends, I am in London and I have to decide immediately. Important, After X-ray and colonoscopy remaining rectum was 5 To 6 Cm. I am really hesitating. This message has been edited. Last edited by: Nasser, |
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Whoever did your first surgery screwed up.... you may be able to sue for damages, they made a pretty negligible mistake... the surgery is probably your best chance since your basically have too much rectum which is a reason for the surgery....
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Hi Nasser,
As you probably already know, Professor Nichols is one of the most respected colorectal surgeons in the UK and really knows his stuff. If you do decide to go with surgery then you couldn't have found a better surgeon this side of the Atlantic. I really don't envy you your decision, but it is also a decision that only you can make. Good luck with whatever you decide to do. Take care. One glass of red wine per day is good for the heart..... it's just that mine's a big heart so I need a very big glass!!!! D-| Cheers! |
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Hi Nasser, Are you still in England? Can you ask the surgeon about the risk of rectal cancer if you do not have the surgery? |
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I wil ask him next visit. at wednsday.
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Dear Nikki2 I asked Prof Nichols and his answer is: The risk of cancer is very low, and it's not the main reason to do pouch advancement surgery. =========================================================================================================================== I scheduled the pouch advancement surgery next October; I think its good time to think about going further or stay as is |
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J-Pouch Community
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I need help to make Decision
