Hi all,

One curious thing I have found here is that SOME people tolerate and propagate misinformation. And, without this degenerating into a spelling contast, I think it prudent to try to avoid it. Another item of concern is that people tend to read more into what I write than what I actually write. I say exactly what I mean. When I say I am surprised, I really am surprised. You wouldn't want me to lie would you? Perhaps what surprises me doesn't surprise you. I'm not sure what this is evidence for. However, my surprise implies nothing about how I view someone's intelligence, lest you know something about my surprise that I don't. More on this issue below.

When I found out about my UC I read a handful of journal articles on it and tried to find out all I could. Some people don't or can't do this, so they end up asking questions here.

When someone asks the question, "Can a UCer have a colon transplant as a remedy for UC" and people don't immediately respond to it that such an operation isn't feasible for such and such reasons (which are linked directly to the nature of UC) I see it as misinformation (the usual caveates concerning casual talk aside -- which I don't take this question and the responses that I found surprising to be, but perhaps I am wrong).

As to the point of being "rude." What is clear is that SOME people are OVERLY sensitive here (and not just on this topic). If you read what I actually wrote I said I was surprised at the question AND some of the responses. the word 'and' indicates that I take the conjunction of the two to be sufficient for my bewilderment. I am surprised at the cojunction as a phenomenon occuring on a board dedicated to information (not misinformation) about such issues. Let me go further so as to make myself clear as day. I was not surprised at the question. I was not surprised at some of the responses. I AM SURPRISED THAT THEY OCCURED IN CONJUNCTION TO ONE ANOTHER. I mean exactly what you read. I don't play the passive-agressive insult game. In fact, that people assume I mean one thing rather than another only serves as evidence to what I claim above. Perhaps they feel uncomfortable that I don't placate them. Perhaps they themselves feel embarrassed at their own feelings of inferiority towards ???. Perhaps they don't like dissent (I fear such people). I don't know. I can't presume to know why people do the things they do, nor can I be responsible for how they take what I write. If I am not clear, then ask for clarification. If you are unclear about what I mean, ask me. If you don't care, then leave it at that. Just don't call foul (and gesture toward me) without making sure what you are calling is the case.

I also don't proof what I write, so there are bound to be spelling errors. Consequently, if you look for these kinds of mistakes as a means of pointing them out, I'm sure there is some place where this "talent" can earn you tickets which can be redeemed for fuzzy prizes and other junk.

Regards,

Z

Your posts neither intimidate nor embarrass me for any reason. Regardless of your intent, some of them come off as rather condescending and argumentative, with a touch of know-it-all. Apparently I am not the only one they have struck this way. Perhaps this is a weakness of communication that occurs solely via internet--or of your writing in particular. In the "appendectomy" post, you asked a question; when people attempted to answer honestly, you responded with an argumentative anatomy lesson. In the "transplant" question, you seemed to imply that it was a silly question (the author's title) with an obvious answer. The spelling notations are merely a somewhat tongue-in-cheek jab at the only "apparent" inaccuracies or weaknesses in your otherwise flawless logic, extensive medical knowledge and impressive command of language. My bad. That you so predictably rise to the bait is evidence of some some degree of rather elevated sensitivity on your part. Cheers--and apologies for any misunderstanding of your generous kind intentions.

This message has been edited. Last edited by: Connie,

** Let me say I hav no clue what happened and why this was posted I was in the hospital for 23 of 30 days this past month... I have no idea who it involves and dont want too lol **

I think we have all posted or said something here that others may have taken the way we DIDNT intend it to be taken ( NOT SAYING YOU DID). That being said, with the number of ppl on this board you are always bound to find someone that will type the opposite to everythng you say or wait for that typeo and so on. I think thats the nature of the beast here. That also being said, I enjoy your posts ad enjoy the things you type and they make me think... thats a good thing. I have made a TON of friends here on the board that have spilled into the real world and on the other side a few that I dont get along with. I think Jan$ has the best quote - Take a deep breath and this too shall pass!... Keep posting what you feel and stay healthy my friend!

In this sort of format, there are always misunderstandings, misquotes, and just plain misinformation. It comes from people who are just speaking their mind and not necessarily checking thier facts before posting. To be able to participate in the long run, you just have to learn to give folks the benefit of the doubt, gently correct when indicated, and try not to make things personal. I think the biggest mistake is to generalize...

We are all human here.

Jan

quote:

Your posts neither intimidate nor embarrass me for any reason. Regardless of your intent, some of them come off as rather arrogant and condescending, with a touch of know-it-all. Apparently I am not the only one they have struck this way. Perhaps this is a weakness of communication that occurs solely via internet--or of your writing in particular. The spelling notations are merely a somewhat tongue-in-cheek jab at the only "apparent" inaccuracies or weaknesses in your otherwise flawless logic, extensive medical knowledge and impressive command of language. That you so predictably rise to the bait is evidence of some some degree of rather elevated sensitivity on your part. Cheers--and apologies for any misunderstanding of your generous good intentions.

Thomas' Mom

Wow, this takes us even further off into left field. Wasn't speaking to you specifically Connie, but if you are afraid it captures something about you, then by all means defend yourself. I was making a general point about people being overly-sensitive, progagating misinformation, and finally, making ad hominem attacks. You seemed to miss this or at least didn't address it. Perhaps all you want to do is engage in hyperbole, sardonicism, and rhetoric. For some reason you appear to find this useful.

To this I say: "Case in point."

quote:

In the "appendectomy" post, you asked a question; when people attempted to answer honestly, you responded with an argumentative anatomy lesson.

This is how inquiry works. If the answer I get doesn't "jive" with some other facts, I bring those up (and vice versa) and querry about the resolution. I am truly interested in getting to the bottom of things. Sometimes this means hard work and argumentation.

For me, this is getting a little tired and off point. I really have nothing more to say about it.

Happy posting.

Z

This message has been edited. Last edited by: Zap,

quote:

I was making a general point about people being overly-sensitive, progagating misinformation, and finally, making ad hominem attacks. You seemed to miss this or at least didn't address it. Perhaps all you want to do is engage in hyperbole, sardonicism, and rhetoric. For some reason you appear to find this useful.

I really don't want this to go on and on but it's my feeling - see above - that you make comments that are belittling. When you state that people are 'overly sensitive' or 'propagating misinformation' or 'making ad hominem attacks' or 'engaging in hyperbole, sardonicism(?), and rhetoric' you appear to be in an attack mode. Having been a member of this site for 7 years it's not often that we see this happen. If you are not attacking or that is not your intent, perhaps you can use language that is a little gentler or kinder. Perhaps in writing it looks more forceful than you mean it to be. BTW - I didn't get that you were speaking specifically to Connie nor did I find that Connie felt that either. I think she was replying to your post and referring only to herself since that is the only person she can speak for. She can't speak for the rest of us. But I have to say that Connie is one of the most grounded and rational people on this site so I'm a little baffled by all of this.....

Another BTW - I have to disagree that there are people on this board who intentionally take the opposite side to whatever is being said. I don't think anyone does that either.

I hope you continue to do well in your recovery.

kathy

Zap,
To me you can be here for 1 day or 10 years and you are no more important then the other person - the amount of time you spend on a job, on a msg board or anything doesnt make you an expert or better then anyone. This is not the place for me to start and I have gone through this before. I dont think I need to make sure everyone knows how long I have been on the board nor do I feel it is my duty to police every post.
Zap, hope you feel better and keep on posting

I firmly believe that it is constructive to speak your mind and request opinions from others to resolve issues, answer questions, and stimulate new ideas. But on our web site, and I call it “ours” because we are here for support, some are well versed on the ins and outs of bowel diseases and some are not. Many come here for reassurance because they just don’t know what to do. But we are not Doctors; we are the patients and are here to support each other.

There will be bad information, there will be good information, but the important thing here is that we stay together and help each other. The good and bad information will wash out in the end. This is a forum for J-Pouch’s the bowel diseases; everyone can contribute on what they need or know. We cannot get of track and criticize, we need each other to help resolve problems and share successes.

ALSO: Can we please move this to the “Room to Rant and Rave” area, it truly belongs there.

This is all my fault--for poking at something that should have been left alone. So let's just drop it.

Copperhead, you are absolutely correct. This IS off topic.

Just to clarify my statement, I wasn't making a comment about being more important than any other person or being an expert and I certainly wasn't anywhere close to implying that I was better than anyone. What I was saying is that in 7 years there aren't many incidents of people attacking one another. That's all that I meant. Jason, if you feel that I am making a comment needs to be addressed, please feel free to PM me at any time and I'd be more than happy to clarify what I mean. I never ever want people to think that I'm more important or know more than they do. I try very hard to help people on this board. Your comments indicate that I've been misunderstood by you. Please PM me rather than making assumptions that aren’t accurate so I can clear up the misinterpretation. Thank you so much.

Connie - this is absolutely not your fault anymore than you're the cause of decline of the glaciers. (Dropping after this post......)

kathy

Well put Kathy
Cooper.. Pm me if you want.. I am 100% better now that they got my system to stay awake and i am hygrated. For the first time in years I see the end and a light and I sit here recovering and smiling Life seems to be getting much better!

Ouch. On behalf of us lawyers, I sure HOPE he isn't one.



(Warning: The above is a JOKE.)

This message has been edited. Last edited by: Rudolph,

Hey Zap, it's obvious that you're fraught with insecurities. Do what you must to deal with your issues and use all this energy wasted in being an ass for healing.

With all that energy, you just may grow a new, healthy colon!