hi, I've read that some of you won't mind going back to the bag if it comes down to it. Do you really mean it? Just curious, thanks.


.....or would you try the Kock pouch first?

This message has been edited. Last edited by: Jenivi,

Hi Jenivi,
If it meant a better quality of life I`d be crazy not to opt for a bag.To get rid of all the misery and hardships of the jpouch would be a God send.If you read some of the posts of members who chose to go back to the bag you will see that almost all of them say that they made the right decision.It`s a big decision to make so I would think long and hard about it first.Good luck I hope that what ever road you take is the right one for you.God bless.

I did it and have lived more in the past 5 years to more than make up for the 5 years I lost with my j-pouch. I do everything I want, eat what I want, take no drugs, sleep through the night, etc...

I had a baby in 2006 and am about to have my second - something I could not have done with my chronic pouchitis. The bag is a non issue for me and my family - in fact it is what allows us to live the life we want so we are quite happy with it!

Once I got used it, I had no problem at all. If I have to go back, it's not a big deal. I guess I don't know that much about the k-pouch. I think when a j-pouch goes bad, it's not much better then UC.

I always said, "I don't want to go back to an ostomy, but at least now I know if I ever have to - it won't be that bad. I could live with it." And yes, I mean that.

I have not really heard the benefits of a K pouch over the ostomy, other than its internal nature. No changing appliances, but there are other things required by a K pouch. I'm not sure I would opt to go that road. I would have to ask around to people who have one.

Steve

I don't think anyone would prefer the bag if their jpouch was working for them. I would not want to go back to the bag but if I had to, I could live with it. I would research the kpouch option first. I would choose life with a bag over death or serious illness.

I opted for the ostomy over the k-pouch for three reasons:

1. You can still get pouchitis with a k-pouch and that was the reason my j-pouch wasn't working for me; I didn't think I'd be improving my situation much

2. I knew the ostomy worked for me and a k-pouch would have been less certain. It might have worked for me, might not have. I was DONE with surgery and trying things, I just wanted to move on and the ostomy gave me the strongest possibility of doing that quickly.

3. Not as many drs do, or know about k-pouches. I wanted to be able to travel the world and not worry if I needed medical attention. Most drs will know what an ostomy is, even if they aren't an expert. I also didn't want to have to travel for complications or on going care of the k-pouch. Again, the ostomy works for me and allows me to just get on with things.

This doesn't mean a k-pouch isn't a good option for others. I know several folks here have them and are very happy with them. All of these things are so dependent on the individual, you need to determine what you need and want out of your treatment and then figure out which option gives you the best chance of obtaining that quality of life.

Yes.

No I would not opt for a Kock.

I didn't have the option of a K-pouch but having learned so much about it here on this site I can honestly say that I am happy to have gone back to an ileostomy. I really didn't want to have to deal with the possibility of more pouchitis or worry about suffering from a slipped valve or trouble intubating etc. Wee Willie (my stoma) and I rub along just nicely and he has never stopped me from doing anything I want, including what I'm doing right this minute, which is enjoying a relaxing holiday with some great food, good wine and excellent weather here in France!

Shell