in december ..my first break from college..actually the DAY i come back i am going to be whipped off to total reconstruction surgery for my fistula where i will have a covering ostomy as well..i dont feel like it's a good idea for him to completely cut from my vagina through to my anus ..seeing as if it fails i will be completely opened..not saying it will fail..he is going to revise the jpouch ...cut open my vagina and cut out the whole fistula area then sew it back together..just a concern..anyone have this done with success?


-alicia

Wow Alicia! That's some impressive surgery!

How do you feel about a reverting to a permanent ostomy? I can't remember if you've mentioned it before. Doesn't that take care of the fistula in the process?

I wish you the best of luck on this long, long journey you're taking!!! I wish I had answers for you.

kathy

OMG I feel so sorry for you that you have to go through with this serious sounding surgery.I will keep you in my prayers.Good luck and God bless.

Hi Alicia,

I don't have any advice for you but just wanted to add my best wishes for a successful outcome to this latest hurdle. I'll be keeping every crossable body part crossed for you.

Luv & hugs

Shell

ohhhh ive thought about the ostomy as a permanent thing and i will live with this fistula forever..i couldnt stand the ostomy a bitttt and ill probably be annoyed havin g the covering ostomy a few weeks let alone my whole life..i am PRAYING that this works..it is my last option..idk

Best of luck Alicia! I hope this takes care of things and you can get back to college life.

Alicia,
I'm confused. So he's not taking a muscle flap from anywhere to fill in the hole? After he cuts out the section with the fistula he just sews it up? Could you clarify?

I've had numerous surgeries to repair and R/V fistula and the one that finally worked was where they took a gluteal thigh flap muscle and used that to repair the fistula and hole. HUGE SURGERY and recovery time but it worked! PM if you want to chat more.

Lori

I tried the "Art of Living" class and it took care of my fistula. This class involves breathing techniques and does wonders! I would recommend trying this before ....this class is a 6 days, 3 hr class and after 2 weeks my fistula was gone!!
If you need more info, feel free to email me...

Good Luck!