Okay I was just in the restroom...something definitely off. For one, I could not stop going to the bathroom...maybe too much info, but it's like it just kept coming out. Then I felt like my intestine was slipping out some and it definitely was. I am so freaked out right now. I have left 2 messages with my surgeon's office and am about to email them. I have a history of a twisted pouch and I feel okay other than like something is certainly wrong. I'm not in pain. But I am getting scared. Help!

Not sure about the going and going.

As for the prolapse, I have been surprised at the level of calm the problem arouses in doctors. From what I have read here, most don't freak about it and just advise you to push it back in. If it won't go back, then it becomes a problem that needs fixing sooner than later.

If it were me, I would be freaking out a bit too.

The correction surgery essentially "tacks" the pouch to the tailbone - hopefully preventing future prolapse. I would assume it would help keep you from a twisted pouch too.

Do a find on 'prolapse' and find some people who have gone through the experience and send them a PM.

Steve

If you surgeon is still open this evening, I would just show up and demand to be seen. If not, if I were you I would go to the ER if you believe your intestine was coming out.

Thanks for your response. It went back in on its own but it was the weirdest, most unsettling sensation! I did a search, and quite frankly, it freaked me out more. I just hope to hear from my surgeon soon! When the pouch twisted he said if it happened again we'd have to do surgery to tack it down, as I didn't make scar tissue that did it anyway. I think it needs to be done, but damn that just felt weird. And everything feels weird down there now. I am trying to just breathe but I am really scared and just need a game plan.
My surgeon is 3 hours away so I don't really want to head down without knowing he'll be there. I have had horrible experiences at the ER's here. They don't even know what a jpouch is and I do not trust them with this.

As long as the prolapse reduces on its own or by gentle reinsertion, there is no real emergency. So, hard as it may be, try to remain calm and also try to keep telling yourself that this is NOT the beginning of the end. The fact that you have had prior issues with pouch position makes it more likely you will have to have a surgical repair to keep it in place. Again, not an emergency and this can be done as an elective procedure.

Jan

Ah, thanks Jan. The voice of reason. Okay...good to know, but I feel sort of like I did when it twisted, which is the real reason I'm scared, b/c that was one of the more painful experiences I've had and I would just really like for something to NOT be wrong right now, you know? I am just wish he'd call me back so I know what I need to do.

I can certainly understand the desire for things to just be normal for a change. There was a time that I thought I'd never stop having a close relationship with my doctors...

You didn't mention having serious pain this time around and that is why I felt that there was not a real urgency here. But, if you are having severe pain, you need to go to the emergency room, even if your doctor has not returned your call. Bring contact information for him so the ER can contact him themselves. However, if the pain is not serious, but you are just feeling that the discomfort is in the same place, you can still wait without worry.

Jan

Well, yes, things being "normal" would be nice...I wonder sometimes what that would be like. I'd lie if I said this does not upset and despress me some. I'm trying very hard to not let it get the better of me, but really, I have not had a break for more than a few months since the time I was 16 and it's really taken and it taking a toll on me. Anyway. I am not in severe pain. My back hurts-feels like a pulled muscle and if I try to go to the bathroom and push just a little bit, it comes out. Not the nicest feeling, very "freaky" actually, but at least it goes back in. He did call. And yes, sort of funny when your surgeon calls and just says, "Hey, what's going on?" ha! Doesn't identify himself, (and he always calls himself by his first name with me now). I said, "Is this Dr. Wise?" He said, "Yes...what's wrong?"
ha. So anyway, he said everything you said, Jan and I have an appointment to see him Monday. Just bad timing (not that it ever is good) b/c my boyfriend (who I haven't seen in 10 weeks) is coming home for a week and we get to spend it dealing with this. Oh well. God, I need to get on anti-depressants or something. Anyone have any recommendations? Jan, that won't interfere with Imuran, Humira, etc. etc.?
Thanks, guys. Dunno what I'd do without this place.
UPDATE: Well...I ate a very little bit tonight...couldn't eat much. Kinda feel crappy. My back is still achey and I am starting to feel nauseaus, so I guess if I start throwing up I'll go to the ER here. I have some Phenergan. Would that be okay to take if I get really nauseaus, just to avoid the "what's a Jpouch?" morons at the ER here?

This message has been edited. Last edited by: Lizz,

Hi Liz, I'm so sorry to hear about your latest problem.

Does anyone know if a liquid diet would help? Perhaps you could PM Janna if you need some more advice.

Dehydration can cause nausea, low potassium can cause muscle aches.
You might try some clear liquids to stay out of the local ER.
I'd suggest start with something like reduced sodium (more
potassium) chicken broth. Sip it very slowly. If that stays down,
then maybe OJ or yogurt if you have not had any trouble with them and
they appeal to you.

Phenergan and/or antidepressants should be fine with your other meds.

For the time being, I'd stick with a liquid or soft diet. Easy to digest stuff, but particularly things that appeal to you. I would not be surprised if your nausea was related to anxiety at this point. The prolapse should not be causing this, since it is so far from your stomach. But, it is true, if you are allowing yourself to become dehydrated, that just compounds the problem.

I hate for you to go to the ER and endure all that for something you can deal with at home with a glass of wine and a hot bath!

Jan

Well, my mother came over last night, and I just took half a Phenergan and went to bed. Been taking it easy all day and just trying not to strain when I use the bathroom. I am really tired, but I think things are okay. It just scared me a lot yesterday. It's a really bizzare feeling! I have an appointment with my surgeon on Monday afternoon, so I guess I'll just go from there! Thanks for all the responses. Yes, I really do have to get better control of my anxiety about stuff. It's becoming a real problem. Should I talk to my surgeon about this on Monday or just see my general practitioner about it?

Whoever you see first is appropriate. I think your surgeon can give you some guidance on what would be good to try first. If not, then your PCP is the next step.

Sometimes just knowing you have the anxiety is calming unto itself. We all need reassurance from time to time...just someone to say it's going to be OK. But, a little chemical help is a good thing too.

Jan