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posted
hi everyone i have had a j-pouch for 3 years now everything going good until now .been having unbearable pain lower left ab had ct scan andcolonascopy they cant find anything they put me on cipro as i cant take flagl.what do i do now
 
Posts: 4 | Location: uc | Registered: February 14, 2013Report This Post
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Tammy-
possible gynecological issues? they probably wouldn't see that kind of stuff on a cat scan.

why are you on cipro if they did a scope and everything looks ok. That doesn't seem right.

Or are you having other pouch symptons besides this massive pain in one area? frequency, urgency?

have they tested for cdiff?

What kind of doctor is caring for you? GI doctor that has expert knowledge of jpouches?
 
Posts: 1090 | Location: Pittsburgh, PA | Registered: December 17, 2008Report This Post
Picture of Jan Dollar
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Sounds like adhesions to me. They would not show up on CT. I don't see how antibiotics would help.

Jan Smiler


Take a deep breath and relax; this too will pass.
 
Posts: 22978 | Location: Fremont, CA, USA | Registered: April 07, 2000Report This Post
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thank you guys for your in-put.if is is adhesions what can be done.they have set me up for a mri and yes i am seeing my gi doctor also he has ordered bloodwork for crohns.
 
Posts: 4 | Location: uc | Registered: February 14, 2013Report This Post
Picture of Jan Dollar
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Mostly just surgical release, but they only do that if it is very serious. Otherwise, it is things like avoidance of roughage in the diet, maybe massage, perhaps pain medication.

Jan Smiler


Take a deep breath and relax; this too will pass.
 
Posts: 22978 | Location: Fremont, CA, USA | Registered: April 07, 2000Report This Post
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help now i cant go to the bathrom at all much pain.could they possibly have missed something on the ct could i have a blockage my gp suggested trying predisone if it is a flare.they wont give me pain meds
 
Posts: 4 | Location: uc | Registered: February 14, 2013Report This Post
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You should go to the emergency room if the pain is unbearable and you aren't pooping or able to eat. I don't think a flare should hurt that bad without other symptoms. If its a pinching burning kind of pain that comes in waves its probably an adhesion. I had problems with them before I had laproscopic surgery to remove them. My doctors indicated that they tend to get bad 3-5 years after having surgery. My doctors sounded nicer and gave me a small number of morphine pills to take if the pain got bad (they also slow down your intestinal contractions). Also, I think its very likely they can miss a blockage. I had tons of adhesions and none showed up on CTs or X-rays and blockages will only show up if they are very severe.
 
Posts: 17 | Location: Bethesda, MD | Registered: August 24, 2011Report This Post
Picture of Jan Dollar
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If you are in serious pain and completely blocked, you need to go to the ER. It could pass on its own, but sometimes it can become a surgical emergency. If the pain is not that bad, you can try riding it out, stop all solid foods, and move around a lot.

Jan Smiler


Take a deep breath and relax; this too will pass.
 
Posts: 22978 | Location: Fremont, CA, USA | Registered: April 07, 2000Report This Post
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im so frustrated it burns constantly.they are diong a mri friday.i guess if its crohns it will show up their also doing a blood test for that i hoe they wont dismiss the thought of adhesions ihope they will do surgery if thats the thought and everything else turns out fine this constant pain is bad althou the predisone seems to be helping some but still not taking the pain away
 
Posts: 4 | Location: uc | Registered: February 14, 2013Report This Post
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