please support our sponsors
Register to post messages
chat | guestbook | ibd links | dietary guidelines | faq's | donate | mailing list | support
j-pouch people
The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  J-Pouch Forums  Hop To Forums  Help! Need advice now!    Itching, Irritation, Burning - HELP CANNOT SLEEP
Go
New
Find
Notify
Tools
Reply
  
Itching, Irritation, Burning - HELP CANNOT SLEEP
 Login/Join 
posted
I am no stranger to butt burn but, I have tried witch hazel pads, A&D, Calmoseptine and Ilex to help ease this. I also use a bidet in the evenings/whenever I am home. I am 37 weeks pregnant so I am not sure what can be done to help at this point. I am in tears from the frustration. I cannot sleep more than 3 hours w/ out waking up to this irritated, burning, itching sensation. It is not the same as butt burn, it occurs no matter where I sit, how, if I am lying down or walking. Is there ANYTHING you can suggest that might be causing this? What should I do or use? I haven't had to see anyone since takedown for any pouch related issues so I a not even sure where to start with my current medical team. Do I get a referral to a GI or email my surgeon's nurse? Any help is much appreciated as I would really like to get some sleep. Confused


Jess

9/11/2012 - complete laparoscopic abdominal colectomy w ileostomy and j pouch
12/4/2012 - takedown and start of a great friendship w/ my new jpocuh!!
2/2013 - pregnant with baby #3
10/23/2013 - Daisy-Jeanne delivered via c section
 
Posts: 67 | Location: Chelmsford, Mass | Registered: September 30, 2012Report This Post
posted Hide Post
Sounds like cuffitus which is inflammation of the cuff or last two centimeters of anal canal. The burning and itching are all internal. Also, if your stools are loose this could cause the burning sensation. Try and bulk you stools if possible if this is the case. Your symptoms could be brought on by the pregnancy or possibly pressure on the pouch? Warm baths also will help.

I know the feeling you are describing very well as my cuffitis is chronic. Contact your surgeon who can probably see you or prescribe something rectally to help. You also should consider finding a qualified GI to assist you if you have any future jpouch issues.
 
Posts: 1930 | Location: ct | Registered: May 23, 2003Report This Post
Picture of TE Marie
posted Hide Post
I'd suggest Metamucil at this point as am almost positive it is ok to take when PG. It should help make your stools less acidic. Jeanne is probably right about the cuffitis or it could be the pregnancy is putting pressure or something that is causing the problem. Can you try to use prep H or similar suppositories? I say this as they have coco butter in them that should be soothing to the cuff if nothing else. Also check to see if this is ok with your pregnancy. The suppositories have different ingredients than the pads do, pads have more witch hazel which include alcohol. You don't want to stick witch hazel up there, ouch!

Can you tell I've read the ingredients of these things too much, lol. Remember Jeanne - we have been through and through this....together.

If you can see your GI at this late stage of your pregnancy it would be great as having a case of untreated cuffitis with a new baby is not necessary. I'm a new grandma and all those new mom memories came back watching our daughter-in-law with our grand daughter.

Best wishes!


UC diagnosed 1997, Take Down 12/29/2010
 
Posts: 4416 | Location: Iowa | Registered: January 22, 2011Report This Post
posted Hide Post
My doctor prescribed colestid to bind the bile (and it also apparently adds bulk), which in theory reduces the burning.

It's a cholesterol reducing drug, so using it for pouch issues is off label.

The way it works as a cholesterol reducer is that, in binding bile and preventing its reabsorbtion, the body is forced to make more bile, which it does through removing and converting cholesterol from the system.

You can see how binding the bile would be beneficial to irritation in the pouch.

Might be worth asking your doc if it might be worth a try.



.


I am almost positive my cat eats part of my brain every night. Just a little bit. He's stretching it out so he doesn't eat it all at once.
 
Posts: 188 | Location: Portland | Registered: May 07, 2011Report This Post
Picture of TE Marie
posted Hide Post
It is important to discuss this medication with any other physicians you have as it also binds other medications you are taking so the timing of taking medications with the timing of this bulking medication is very important. I have a huge can of it that's unopened for this reason Frowner


UC diagnosed 1997, Take Down 12/29/2010
 
Posts: 4416 | Location: Iowa | Registered: January 22, 2011Report This Post
posted Hide Post
As quickly/suddenly as this came on it went away. I am having some frequency as the braxton hicks contractions become stronger but am finding that the discomfort is pretty non-existent, knock on wood. I have begun having my wafers again to keep things more formed and find this is helping tremendously. I am one week out from delivery and getting excited/anxious. Just nervous about my "bowels" waking up after the spinal wears off. I have a pretty understanding OB and he is on board with getting the catheter out and me up and moving as soon as I feel ready. Thank you all for your advice and wisdom, it is much appreciated.


Jess

9/11/2012 - complete laparoscopic abdominal colectomy w ileostomy and j pouch
12/4/2012 - takedown and start of a great friendship w/ my new jpocuh!!
2/2013 - pregnant with baby #3
10/23/2013 - Daisy-Jeanne delivered via c section
 
Posts: 67 | Location: Chelmsford, Mass | Registered: September 30, 2012Report This Post
posted Hide Post
My doctor called in Lidocaine 5% ointment. That is amazing. Burns a little when you put it on but in a few minutes: RELIEF. Maybe this would help give you some instant relief through this. I had one weekend I was really sick and my poor butt. It burned so bad so I asked Target Pharmacy and that is what she recommended. So glad she did. I have only used it a few times but grateful to have on hand. But your doctor does have to send in a prescription for it. Good Luck.
 
Posts: 180 | Location: Plesant Lake | Registered: February 24, 2012Report This Post
Picture of Nice Nurse
posted Hide Post
It could be yeast. Try elimanating sugar and/or wheat for two weeks and see if you improve.


J-poucher since 1995
 
Posts: 36 | Location: upstate NY | Registered: February 15, 2011Report This Post
  Powered by Social Strata  
 

The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  J-Pouch Forums  Hop To Forums  Help! Need advice now!    Itching, Irritation, Burning - HELP CANNOT SLEEP

copyright the j-pouch group 2006-2007