Has anyone had this happen I went to a new Gi and she said I do not have crohns.. brief history I was told for yrs I had UC had jpouch and many problems etc, my surgeon did many tests said no crohns then one day out of blue says this tests say's yes.


He sent me to the Gi and she says no where on this tests does it say I have crohns he refuses to fix my hernia's or touch me until crohns is undercontrol she says no he is wrong.

I feel like a yo yo nobody can make up there mind but she did give me new meds and they seem to work soem what but I just started taking a few days ago. I did ask her what I have she said she doesnt know yet but no tests say crohns..

So lost on what is even wrong with me because they seem to not know anything but this new Gi seems to be on the right track I knew deep down I did not have crohns ...

I need theses darn hernia fixed because if I go back to work I won't pass the pysical as i'm an auto tech I been off for 2yrs and I need to go back doctor is making me mad ..The crappy part I have yet to find a surgeon who will even touch me locally ...IF I had the money I would leave this crappy state and find me a doctor or even go back to CC...

I feel this doctor is stopping me from moving on from life.. He was trained by the U of M and by clevelenad clinic you think he would have some common sense atleast... I knew he was wrong because every time I asked him if he had a patient like me he would say no your a challenge.. Any advice would be great on what to do ..mainly for my herina's to get repaired... other issue I think The gi is on the right track.

Jeff,

The only thing I can think of suggesting is to try and find a teaching hospital where they take on challenging patients. I have found that the hospital where I go (which is a teaching hospital) has doctors who are not afraid to take things on that others might not. I know of two surgeons who have done adhesion removal without batting an eye, while others here say their surgeons won't because of the risk of the adhesions growing back.

Might try to find some and ask around.

Jeff,
Have you tried the University of Chicago? It is a great teaching hospital. They did my surgeries there. They have an outstanding staff in the IBD dept. I also notice your in Michigan and so it is a short driving distance.

Jim

already at a teaching hositol thats what henery ford is ..also as I stated I can not leave state thanks anyhow for the replies .

Hey Jeff,

Since it is two years and you can't work have you applied for disability once you're under that you would be free to leave the state right? Even now is there away for you to go to the Cleveland Clinic from your current location to at least get a correct diagnoses of your condition or even the one in Chicago depending on what's closer for you. You sound as if you really need another set of eyes on your condition from a surgical stand point.

C

Hey Jeff, This is kind of a side note, but it might be worth considering. I decided to give up wrenching do to the increased risk of hernias after the surgery. I know a lot of guys that are “normal” and have ended up getting the mesh just because of the toll wrenching takes on your body. It kind of feels like I wasted a bunch of time getting my certs and going to school, but at least I can still do it as a hobby, and to save money on my own cars. I took a position as a service writer for the sake of getting short term disability, for the surgeries, but I hate it. As soon as my commitment to the company is up for the disability, I am gone. I am considering seeing about teaching at the community college I went too for my schooling. That way I can still have a good day at work, as I can't imagine enjoying any other career, but protect myself by not trying to work at the speed required to make any money in a production shop.

Thanks for teh advice but the type of person I i'm I can not do something not active I need physical thats me and I tried to change years before and I end up doing something physical my bodys says no my mind says screw you jeff to bad thats what you do.. So I 'm stuck also i'm subborn so I wont give up since I was 10yrs and didnt have much of a child hood to learn the trade for nothing... I spent 10yrs old to 25 did not party etc bought a house at 18 to learn this trade so don't want it all for nothing.


I do jobs that most dunno how as I put my whole young life into it so i'm sorry no way could I do service writing or teacher not for me . Its great its for you but I need physical work thats my personally nothing I can change as I won't like life umless i'm doing something physical. I plan to push the issue and I know there is a doctor out there taht will get me back in business in life you don't give up at something you love I learned that as a child and I plan to stick top that .

be well and thanks anyhow for advice.



C0bread i'm on disbality 1200.00 amonth is nothing and does not pay bills and I have went to Cc in the past it costs me for gass motel ,food etc 500-600dollars I dunno about but that you but that 1200.00 does not go far as I have to pay bills so how can I go out of state keep telling folks this you may have a husband or wife working but I do not my wife cant find a decnet job here so its tough living on 1200.00 a month I lost everything I owned due to getting 0 dollars for 3yrs and having to go to court to sue for my disablity and took me 3yrs we lived in my house for 6 months no heat hardly any food until they took it,, we had to sleep in the car for weeks...in the winter I went from making 100,000 a yr to nothing and get screwed my the state and insurance companys i'm sorry i,m going off but we been through the mill some of you have a back up family member as we do not...

The thing is, Crohn's and UC are so closely related that alot of times there is a diagnosis of "indeterminant colitis" meaning, they are pretty sure you have colitis, but there is a very very small chance it could be crohns. I had my entire colon biopsied after my colectomy and they still didn't know. The other thing is, sometimes it is hard to get symptoms of either disease under control. There is a point where meds can stop working and the only option is surgery. Also, there are many meds that are used to treat both UC and Crohn's so it may be just coincidence that your GI has found you some relief.

My surgeon also is from Cleveland Clinic (in Ft. Lauderdale, FL) and he is a wonderful, knowledgeable doctor. I also have a separate GI doctor. It sounds to me like you need a second opinion from another surgeon. If your doctor has never had another patient like you, then it wouldn't hurt to consult with another doctor who is more experienced. Also, keep in mind that while GI's are knowledgeable, they are not surgeons, so they may not know everything that a surgeon might due to lack of experience in that area.