I am two years since take down and had my first scope of the pouch. Things have been going pretty good since take down (6-8 trips daily, little leakage at night)but the doc wanted to check it out so we did a scope. During the scope he did a biopsy. I got a letter from him that stated I had active colitus. Not understanding, I called for an explanation. The docs nurse practitioner stated that I had active colitus at the top of my pouch and the entrance to the small intestine. She then stated that this was another way of saying "Crohns". What does this mean for someone that has a j-pouch because they thought they had UC to now be told Crohns. Is there any hope for the future or will the crohn's destroy the pouch. I can't go back to the colostomy. I just can't. Any feedback would be appreciated.

Steve

I would not assume that the interpretation means Crohn's. It could easily mean pouchitis. Plus, even if this is Crohn's, it does not mean the pouch must be removed. It means you need to be on maintenance medication. First step is antibiotics, then if they don't work, other IBD meds. You are a loooooong ways from removing the pouch, especially since you are functioning fairly decently.

You need to talk to your doc and ask these questions directly. Make an appointment if necessary.

Jan

Thanks Jan. That eases my mind a bit. I have an appt in two weeks and will ask lots of questions. btw i am on xiafaxin and canasa supp with vsl #3