please support our sponsors
Register to post messages
chat | guestbook | ibd links | dietary guidelines | faq's | donate | mailing list | support
j-pouch people
The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  Imported Forums  Hop To Forums  Help! Need advice now!    C Diff question
Go
New
Find
Notify
Tools
Reply
  
  Login/Join 
Posted
My husband has been in the hospital for 9 days. He came home yesterday. He had high output from his ostomy. He has a jpouch and is waiting to get reconnected in a few weeks. They were able to lessen the output with a combo of immodium, tincture of opium and lomotil. Prior to this hospital stay, he had been taking flagyl and cipro to battle an infection caused by the tear in his small intestine.

He started having mucous coming out of his jpouch (no blood, just clear or creamy colored) starting a few days ago, and his GI in the hospital tested it. He called today and said he had a trace amount of CDiff in the mucous and told him to take Flagyl for 2 weeks and eat yogurt. They also tested his ostomy output and found no CDiff there.

I am really worried about this because its just yet another thing going on with him. Should I be??
 
Posts: 26 | Location: NJ | Registered: March 03, 2005Edit or Delete MessageReport This Post
Picture of Shelby
Posted Hide Post
Did he have a c diff infection prior to his colectomy?
If not, it has possibly been there all along, but no one caught it, or tested for it.
Also, cipro can 'promote' c diff so if he is still on that, I would ask your DR about continuing. If he isn't taking it now, and was prior to the hospital visit, like you say, it could have facilitated this infection.
I wouldn't worry too much. Even if the flagyl doesn't clear it up, there is always vancomycin. I would be encouraged that there is no c diff from the ostomy output, after all it is rare to have c diff in the sm. intestine.
Also, mucous draining from the new pouch is normal (and good). Just c diff+ mucous isn't.
 
Posts: 1727 | Location: Virginia | Registered: October 12, 2001Edit or Delete MessageReport This Post
Posted Hide Post
Thanks for your reply Shelby. I don't think he had CDiff prior to his colectomy, although he was at such a crappy hospital and with bad drs at that time, that who knows!

His new (good) dr. said there was a "trace" amount and neither he nor my husband seem too worried about it. Just me the extreme worrier!!

His GI is going to tell the infectious disease dr. that had worked on his first infection about it just so they are on the same page.

He is no longer on the cipro. Now just the flagyl and yogurt.

I feel like this will delay the take-down, but I dont know. He has an appt. tuesday with both the GI and the surgeon, so he will find out more then.

In the meantime, he feels great, but his wife is falling apart! Smiler
 
Posts: 26 | Location: NJ | Registered: March 03, 2005Edit or Delete MessageReport This Post
Picture of Shelby
Posted Hide Post
I consulted with an infectious disease doctor prior to my colectomy and naturally he seemed to be better at handling the c. diff situation than my GI or surgeon. He was more knowledgeable and really explained my situation in a way that I could understand. He also gave me data and statistics. In fact, I only saw him twice, once in the hospital when I had c diff (because he was on call) and then once in his office. He was a pleasure to deal with.
So, it's a good idea that everyone is 'on the same page'. Even if it does delay his next surgery, be glad they caught it now, rather than later. That is a good thing Smiler
 
Posts: 1727 | Location: Virginia | Registered: October 12, 2001Edit or Delete MessageReport This Post
Picture of Jan Dollar
Posted Hide Post
It is important to know if the findings were just for C. difficile or the toxin. There are many strains of C. difficile that are not pathogenic. It is only the toxin producing strains that damage the bowel and cause inflammation. I am going to presume that the toxin was present and not just C. diff.

He should be tested again after the antibiotic course is run to make sure that the toxin is absent. But if he develops new symptoms again, testing should be repeated. False negatives are fairly common.

Jan Smiler


Take a deep breath and relax; this too will pass.
 
Posts: 15093 | Location: Fremont, CA, USA | Registered: April 07, 2000Edit or Delete MessageReport This Post
Posted Hide Post
The dr. told him it was the inactive spore form - the dr. thinks he might have gotten it in the hospital.
 
Posts: 26 | Location: NJ | Registered: March 03, 2005Edit or Delete MessageReport This Post
 Previous Topic | Next Topic powered by eve community  
 

The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  Imported Forums  Hop To Forums  Help! Need advice now!    C Diff question

copyright the j-pouch group 2006-2007