Please, I am fighting down panic...

This afternoon I began having some pain again, anal pain, just like it was a couple of weeks ago with the pouchitis or c.diff. or whatever it was, when the scope showed a huge ulcer right at the cuff/anus. The pain isn't too bad yet, but this is how everything started off back in August (for the first disputed round of pouchitis). My frequency is not up; metamucil is helping with the runniness issue, and I'm not having any spasms. Still on the 250 mg Flagyl 2x a day.

I AM having my period, which always makes things a bit more runny/frequent and I do sometimes get a sore bum.... But I'm just suspicious now, especially because the pain is in the same exact spot, and I'm really, really trying hard not to freak out....

What do I do? See if it gets worse? Any treatment for anal/pouch ulcerations? Call my surgeon? I'm scheduled to see him the 1st, but if this gets worse I'm not sure I should wait, especially if there is c.diff. involved...

Gin

By answering, your topic will get higher on the list, so I'm hoping Jan sees this. She knows a lot more about this than I do. I had stomach ulcers and Crohn's of the pouch. From what I know, it can take months of antibiotics for pouchitis. I was on Flagyl about 2 weeks, then felt worse, so my GI doc put me on Cipro for about 2 months more. It finally got under control. If the pain is really really bad and worse than before, you should call your GI doc. Well wishes to you.
Mav+

Since you were positive for C. difficile toxin and recently reduced your Flagyl dose, I would call your surgeon and ask about increasing the dose back to where it was when your symptoms were improving. I would not mess around with it and wait for it to get worse. Of course, I know your surgeon is skeptical about the C. diff infection, but this is not like a religion that you have to believe in, just a cold, hard fact.

Jan