I have had a j-pouch for 4 years after 12 years of UC.

My 14-month-old daughter has recently had occasional rectal bleeding
and after a colonscopy revealed an inflamed colon, we have been told
she likely has some form of colitis (small chance it is bacterial,
we are treating with antibiotics to see if that will resolve her
symptoms).

Needless to say I am very upset that she may have to deal with this,
especially at such a young age.

What I am looking for is any information on pediatric colitis and
how it may differ from colitis in adults regarding symptoms,
treatment, progression, etc. If there are any
parents on this board whose young children have UC or j-pouches, I would appreciate any advice they could give me on how they
dealt with it.

One of the things I tried before my surgery was a diet book called "Breaking the Vicious Cycle" by Elaine Gottschell. She wrote the book and came up with this diet when her daughter was very ill with colitis. This diet and advice from Elaine has been a great help to many people. It might be worth a look.

Miros, I was diagnosed with colitis at six. I generally had classic UC symptoms, but without a doubt, they hit me harder than they would an adult. I was bleeding a lot, and for a small body, thats very serious. I ended up being forced into surgery at age 9 due to the uncontrollable bleeding. If you have any specific questions, feel free to PM me, though I'm pretty sure there are a few mothers on the board whose children have UC/j-pouch.

i was diagnosed at 18months old so my mother had to manage my disease untill i was old enough to take control. I took azolphidene for a while and dipentum and others. My pedi gasteronologist helped her with how much control was to much and so on. I was able to eat what i wanted and if it hurt me i would stop. he stressed to make my childhood as normal as possible and do what we could.
i wasnt even on the growth charts when i was little because of the UC using up all my bodies resources. my doctor told me to eat a healthy meal and then to eat things like candybars to get the calories up to help me grow.
if you have any specific questions i would be glad to answer them and get you some advice from my mother as well.

Best of Luck with everything!

My advice would be to contact your CCFA chapter and see if they have a support group for parents. Considering that 18 months is very young, maybe the chapter can put you in touch directly with another mother with a similar experience.

Hi,
I had my first surgery on my second birthday and things went downhill from there! If only 'fit for life' had exisited then, maybe I would not have a k pouch now....
It is worth a try to read 'fit for life' and apply some if not a good number of the principals mentioned in it...they speak about children in the book as well...even with a k pouch I apply the principals and find that I suffer less from pouchitis than others and have fewer helath issues than even my 'normal' friends and family...
Couldn't hurt!
Sharon