Can anyone with Crohn's and j pouch tell me your symptoms? My husband is having an upper GI and if that is neg, he is getting a permanent ileostomy. He has had nothing but problems...(even with an end ostomy) he has pain, "rumblings" of gas pain--really bad--feels like a lava lamp, explosive and frequent bm's--just no quality of life. He has a beautiful pouch except for one timy tear sized ulcer in it. Just curious to know what other people's symptoms are....

Jen

Jen what has he actually tried to resolve these symptoms?

Sometimes there are symptoms of Chrohns but they are not sure. I had an R/V fistula 18 months after my jpouch surgery with no other sign of Chrohns but after 2 failed repair surgeries and response to Chrohns meds I think I have CHrohns. I thought for a long time I had to go back to the ileostomy to resolve but now with Remicade success I dont think I have to I just want to share that because sometimes it doesn't matter which disease it is as long as you find what works. I thought the ileo was my only salvation and it may be someday but for now I am able to be just ok without it. I take one day as a time and sometimes it is very difficult. I wish you the best of everything!!!

kim